Stanford/Lucile Packard Children’s Hospital

Stanford Children's Neurofibromatosis Clinic
750 Welch Rd
Palo Alto, CA 94304

NF Clinic Network?:Yes
Contact Information:

Scheduling and other inquiries: 650-723-0993 or

Clinic Director's Name:Cynthia Campen, MD and David Stevenson, MD
Clinic Coordinator Name:Samantha Ingerick, NP
Number of NF1 Patients Seen in Last Year:439
Number of NF2 Patients Seen in Last Year:30
Number of Schwannomatosis Patients Seen in Last Year:2
Total number of patients seen last year (includes other related diagnoses):562
Patient Age Breakdown:89% <18 yrs
11% 18 yrs or older
Does the clinic see adults for routine NF-related care?:No
Does the clinic enroll patients for onsite research?:Yes
Does the clinic inform patients about outside research?:Yes

NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric
Areas of Focus: Dystrophic Scoliosis, Genetics, Gliomas - Brain Tumors, Learning Disabilities - ADHD, Neurology, Ophthalmology - Optic Glioma, Other Orthopedic - Bone issues, Plexiform Neurofibromas, Pseudarthrosis, Surgery