Massachusetts General Hospital

Neurofibromatosis Clinic
55 Fruit St.
Boston, MA 02114

NF Clinic Network?:Yes
NF Consortium Site?Yes - click here for more info
Contact Information:

Scheduling and other inquiries: 617-724-7856

Clinic Director's Name:Scott Plotkin, MD, PhD
Clinic Coordinator Name:Ann Slater, RN
Number of NF1 Patients Seen in Last Year:340
Number of NF2 Patients Seen in Last Year:181
Number of Schwannomatosis Patients Seen in Last Year:35
Total number of patients seen last year (includes other related diagnoses):612
Patient Age Breakdown:19% <18 yrs
81% 18 yrs or older
Does the clinic see adults for routine NF-related care?:Yes
Does the clinic enroll patients for onsite research?:Yes
Does the clinic inform patients about outside research?:Yes

NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous Neurofibromas, Dermatology, ENT, Genetics, Gliomas - Brain Tumors, Neurology, Ophthalmology - Optic Glioma, Other, Pain, Plexiform Neurofibromas, Psychosocial, Surgery, Vasculopathies of NF