SSM Health Cardinal Glennon Children’s Hospital

Neurofibromatosis Clinic
1465 South Grand Blvd
St. Louis, MO 63104

NF Clinic Network?:Yes
Contact Information:

Scheduling and other inquiries: 314-577-5397

Clinic Director's Name:Amelia Kirby, MD and Thomas Geller, MD
Clinic Coordinator Name:Julie Engel, RN
Number of NF1 Patients Seen in Last Year:282
Number of NF2 Patients Seen in Last Year:3
Number of Schwannomatosis Patients Seen in Last Year:1
Total number of patients seen last year (includes other related diagnoses):334
Patient Age Breakdown:91% <18 yrs
9% 18 yrs or older
Does the clinic see adults for routine NF-related care?:Yes
Does the clinic enroll patients for onsite research?:No
Does the clinic inform patients about outside research?:Yes

NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous Neurofibromas, Dermatology, Dystrophic Scoliosis, ENT, Genetics, Gliomas - Brain Tumors, Learning Disabilities - ADHD, Neurology, Ophthalmology - Optic Glioma, Other Orthopedic - Bone issues, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Surgery, Vasculopathies of NF