The Children’s Hospital of Philadelphia

University of Pennsylvania Neurofibromatosis Program
3501 Civic Center Blvd
Philadelphia, PA 19104
Click to Visit Clinic Website

NF Clinic Network?:Yes
NF Consortium Site?Yes - click here for more info
Contact Information:

Scheduling: Pediatric Clinic: 215-590-7012; Adult Clinic: 215-662-4740

Other inquiries: 215-590-7012 or

Clinic Director's Name:Michael Fisher, MD
Clinic Coordinator Name:Amanda Hall, BS, RN
Number of NF1 Patients Seen in Last Year:482
Number of NF2 Patients Seen in Last Year:23
Number of Schwannomatosis Patients Seen in Last Year:1
Total number of patients seen last year (includes other related diagnoses):547
Patient Age Breakdown:85% <18 yrs
15% 18 yrs or older
Does the clinic see adults for routine NF-related care?:Yes
Does the clinic enroll patients for onsite research?:Yes
Does the clinic inform patients about outside research?:Yes

NF Type: NF1, NF2
Ages: Pediatric, Adult
Areas of Focus: Cutaneous Neurofibromas, Dermatology, Dystrophic Scoliosis, ENT, Genetics, Gliomas - Brain Tumors, Learning Disabilities - ADHD, Neurology, Ophthalmology - Optic Glioma, Other Orthopedic - Bone issues, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Surgery, Vasculopathies of NF