University of Iowa Hospitals and Clinics

Neurofibromatosis Clinic
200 Hawkins Drive; Pediatric Specialty Clinic
Iowa City, IA 52242

NF Clinic Network?:Yes
Contact Information:

Scheduling: 319-356-2229 

Other inquiries: 319-356-2675

Clinic Director's Name:Pamela Trapane, MD, MME
Clinic Coordinator Name:Karin Panzer, MS, CGC
Additional Details:

We attempt to coordinate our visits when at all possible.

Number of NF1 Patients Seen in Last Year:134
Number of NF2 Patients Seen in Last Year:3
Number of Schwannomatosis Patients Seen in Last Year:2
Total number of patients seen last year (includes other related diagnoses):215
Patient Age Breakdown:70% <18 yrs
30% 18 yrs or older
Does the clinic see adults for routine NF-related care?:Yes
Does the clinic enroll patients for onsite research?:Yes
Does the clinic inform patients about outside research?:Yes

NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous Neurofibromas, Dystrophic Scoliosis, ENT, Genetics, Gliomas - Brain Tumors, Learning Disabilities - ADHD, Neurology, Ophthalmology - Optic Glioma, Other Orthopedic - Bone issues, Plexiform Neurofibromas, Psychosocial, Surgery