University of Chicago

Neurofibromatosis Program
920 East 58th St. Room 901
Chicago, IL 60637

NF Clinic Network?:Yes
NF Consortium Site?Yes - click here for more info
Contact Information:

Scheduling: 773-702-6169

Other inquiries: 773-702-6487

Clinic Director's Name:James Tonsgard, MD
Clinic Coordinator Name:Cynthia MacKenzie, RN
Number of NF1 Patients Seen in Last Year:175
Number of NF2 Patients Seen in Last Year:23
Number of Schwannomatosis Patients Seen in Last Year:10
Total number of patients seen last year (includes other related diagnoses):219
Patient Age Breakdown:44% <18 yrs
56% 18 yrs or older
Does the clinic see adults for routine NF-related care?:Yes
Does the clinic enroll patients for onsite research?:Yes
Does the clinic inform patients about outside research?:Yes

NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous Neurofibromas, Dystrophic Scoliosis, Gliomas - Brain Tumors, Learning Disabilities - ADHD, Neurology, Ophthalmology - Optic Glioma, Other Orthopedic - Bone issues, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Surgery, Vasculopathies of NF