Children’s Hospital of Pittsburgh of UPMC

Neurofibromatosis Clinic
4401 Penn Avenue
Pittsburgh, PA 15224
Click to Visit Clinic Website

NF Clinic Network?:Yes
Contact Information:

Scheduling and other inquiries: 412-692-5520 

Clinic Director's Name:Kathy Gardner, MD and Jenna Gaesser, MD
Clinic Coordinator Name:Beth Heuer, CRNP
Number of NF1 Patients Seen in Last Year:226
Number of NF2 Patients Seen in Last Year:6
Number of Schwannomatosis Patients Seen in Last Year:3
Total number of patients seen last year (includes other related diagnoses):433
Patient Age Breakdown:90% <18 yrs
10% 18 yrs or older
Does the clinic see adults for routine NF-related care?:Yes
Does the clinic enroll patients for onsite research?:Yes
Does the clinic inform patients about outside research?:Yes

NF Type: NF1, NF2
Ages: Pediatric, Adult
Areas of Focus: Cutaneous Neurofibromas, Dermatology, Dystrophic Scoliosis, ENT, Genetics, Gliomas - Brain Tumors, Learning Disabilities - ADHD, Neurology, Ophthalmology - Optic Glioma, Other, Other Orthopedic - Bone issues, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Surgery, Vasculopathies of NF