Finding a Healthcare Professional

We understand how difficult it is to find healthcare professionals who have experience diagnosing and caring for NF patients. We are constantly working to expand the NF Clinic Network and add to our list of other healthcare professionals. Below you can search for a clinic that has joined our NF Clinic Network, as well as other specialists who are familiar with NF throughout the country.

About the NF Clinic Network (NFCN)

For more information or questions about the NFCN, contact:

HEATHER RADTKE, MS, CGC
NF Clinic and Symposium Coordinator
hradtke@ctf.org
646-738-8574

The Neurofibromatosis Clinic Network (NFCN) was established by the Children’s Tumor Foundation (CTF) in 2007 to standardize and raise the level of neurofibromatosis (NF) clinical care nationally and integrate research into clinical care practices. The NFCN is the first nationwide network dedicated to improving clinical care and establishing best practices for treating those living with NF. The NF Clinic Network recognizes clinics that provide comprehensive medical care to individuals with NF, foster patient education, and encourage participation in clinical research trials and the NF registry. There are currently 50 NF Clinics in the NFCN that have demonstrated their ability to provide specialty care to NF patients and their families. 

Search the NFCN by State

Click on state to view healthcare professionals who are part of our NF Clinic Network.

Alabama

University of Alabama at Birmingham
UAB Neurofibromatosis Clinic • Birmingham, AL

Arkansas

Arkansas Children’s Hospital
Neurofibromatosis Clinic • Little Rock, AR

California

Children’s Hospital Los Angeles
Comprehensive Neurofibromatosis Clinic • Los Angeles, CA

Children’s Hospital of Orange County Children’s Hospital
CHOC Neurofibromatosis Clinic • Orange, CA

Lucile Packard Children’s Hospital, Stanford
Stanford Children's Neurofibromatosis Clinic • Palo Alto, CA

Colorado

Children’s Hospital Colorado
Neurofibromatosis Program • Aurora, CO

Connecticut

Connecticut Children’s Medical Center
Neurofibromatosis Clinic • Farmington, CT

DC

Children’s National Health System
Jennifer and Daniel Gilbert NF Institute • Washington, DC

Florida

Nicklaus Children’s Hospital
Nicklaus Children’s Hospital Neurofibromatosis Center • Miami, FL

Florida Hospital for Children
Neurofibromatosis Clinic • Orlando, FL

Johns Hopkins All Children’s Hospital
Neurocutaneous Disorders Clinic • St. Petersburg, FL

Moffitt Cancer Center
Moffitt Genetic Neuro-oncology Clinic • Tampa, FL

Georgia

Emory University/Children’s Healthcare of Atlanta
Neurofibromatosis Clinic • Atlanta, GA

Iowa

University of Iowa Hospitals and Clinics
Neurofibromatosis Clinic • Iowa City, IA

Illinois

Ann and Robert H. Lurie Children’s Hospital of Chicago
Neurofibromatosis Clinic • Chicago, IL

University of Chicago
Neurofibromatosis Program • Chicago, IL

Kentucky

University of Kentucky
Kentucky Neuroscience Institute Neurofibromatosis Clinic • Lexington, KY

Louisiana

Louisiana State University and Children’s Hospital of New Orleans
Children's Hospital Neurofibromatosis Clinic • New Orleans, LA

Massachusetts

Boston Children’s Hospital
Multidisciplinary Neurofibromatosis Program • Boston, MA

Massachusetts General Hospital
Neurofibromatosis Clinic • Boston, MA

Maryland

Johns Hopkins University
Comprehensive Neurofibromatosis Center • Baltimore, MD

Michigan

Henry Ford Health System
Multidisciplinary Neurofibromatosis Clinic • Detroit, MI

Minnesota

University of Minnesota Masonic Children’s Hospital
Journey Clinic • Minneapolis, MN

Children’s Hospitals and Clinics of Minnesota
Neurocutaneous Syndromes Clinic • Minneapolis, MN

Mayo Clinic
Department of Clinical Genomics • Rochester, MN

Missouri

SSM Health Cardinal Glennon Children’s Hospital
Neurofibromatosis Clinic • St. Louis, MO

Washington University/St. Louis Children’s Hospital
Washington University NF Clinical Program • St. Louis, MO

North Carolina

University of North Carolina Hospitals
UNC Hospitals Neurofibromatosis Clinic • Chapel Hill, NC

Duke University Medical Center
Duke Comprehensive Neurofibromatosis Clinic • Durham, NC

New Jersey

Rutgers New Jersey Medical School
The Neurofibromatosis Center of New Jersey • Newark, NJ

St. Joseph’s Regional Medical Center
Neurofibromatosis Diagnostic and Treatment Center • Paterson, NJ

New York

Albany Medical Center
The Melodies Center • Albany, NY

Montefiore Medical Center/Children’s Hospital at Montefiore
The Neurofibromatosis Center at Montefiore • Bronx, NY

New York Presbyterian Morgan Stanley Children’s Hospital Columbia University Medical Center
Division of Clinical Genetics • New York, NY

NYU Langone Medical Center
The Comprehensive NF Center at NYU Langone • New York, NY

Golisano Children’s Hospital at University of Rochester Medical Center
Comprehensive Neurofibromatosis Clinic • Rochester, NY

Ohio

Cincinnati Children’s Hospital Medical Center
The Cincinnati Neurofibromatosis Clinic • Cincinnati, OH

Cleveland Clinic Foundation
Neurofibromatosis Center • Cleveland, OH

Rainbow Babies and Children’s Hospital
Multidisciplinary Neurocutaneous Syndromes Clinic • Cleveland, OH

Nationwide Children’s Hospital
Neurofibromatosis Clinic • Columbus, OH

Ohio State University
Neurofibromatosis Clinic • Columbus, OH

Oklahoma

University of Oklahoma Health Sciences Center
University of Oklahoma NF Clinic • Oklahoma City, OK

Pennsylvania

The Children’s Hospital of Philadelphia
University of Pennsylvania Neurofibromatosis Program • Philadelphia, PA

Children’s Hospital of Pittsburgh of UPMC
Neurofibromatosis Clinic • Pittsburgh, PA

Texas

UT Southwestern/Children’s Health Dallas
Neurofibromatosis Clinic • Dallas, TX

Texas Children’s Hospital/Baylor
Neurofibromatosis Clinic • Houston, TX

Utah

University of Utah
Neurofibromatosis Clinic • Salt Lake City, UT

Washington

Seattle Children’s Hospital
Neurofibromatosis Clinic • Seattle, WA

Wisconsin

Children’s Hospital of Wisconsin
NF/RASopathy Center • Milwaukee, WI

Search the NFCN by Specialty

Filter Your Search

Search results:

Albany Medical Center

The Melodies Center • Albany, NY

Ann and Robert H. Lurie Children’s Hospital of Chicago

Neurofibromatosis Clinic • Chicago, IL

Arkansas Children’s Hospital

Neurofibromatosis Clinic • Little Rock, AR

Boston Children’s Hospital

Multidisciplinary Neurofibromatosis Program • Boston, MA

Children’s Hospital of Pittsburgh of UPMC

Neurofibromatosis Clinic • Pittsburgh, PA

Children’s Hospital of Wisconsin

NF/RASopathy Center • Milwaukee, WI

Children’s Hospitals and Clinics of Minnesota

Neurocutaneous Syndromes Clinic • Minneapolis, MN

Children’s Hospital Colorado

Neurofibromatosis Program • Aurora, CO

Children’s Hospital Los Angeles

Comprehensive Neurofibromatosis Clinic • Los Angeles, CA

Children’s Hospital of Orange County Children’s Hospital

CHOC Neurofibromatosis Clinic • Orange, CA

Children’s National Health System

Jennifer and Daniel Gilbert NF Institute • Washington, DC

Cincinnati Children’s Hospital Medical Center

The Cincinnati Neurofibromatosis Clinic • Cincinnati, OH

Cleveland Clinic Foundation

Neurofibromatosis Center • Cleveland, OH

Connecticut Children’s Medical Center

Neurofibromatosis Clinic • Farmington, CT

Duke University Medical Center

Duke Comprehensive Neurofibromatosis Clinic • Durham, NC

Emory University/Children’s Healthcare of Atlanta

Neurofibromatosis Clinic • Atlanta, GA

Florida Hospital for Children

Neurofibromatosis Clinic • Orlando, FL

Golisano Children’s Hospital at University of Rochester Medical Center

Comprehensive Neurofibromatosis Clinic • Rochester, NY

Henry Ford Health System

Multidisciplinary Neurofibromatosis Clinic • Detroit, MI

Johns Hopkins All Children’s Hospital

Neurocutaneous Disorders Clinic • St. Petersburg, FL

Johns Hopkins University

Comprehensive Neurofibromatosis Center • Baltimore, MD

Louisiana State University and Children’s Hospital of New Orleans

Children's Hospital Neurofibromatosis Clinic • New Orleans, LA

Lucile Packard Children’s Hospital, Stanford

Stanford Children's Neurofibromatosis Clinic • Palo Alto, CA

Massachusetts General Hospital

Neurofibromatosis Clinic • Boston, MA

Mayo Clinic

Department of Clinical Genomics • Rochester, MN

Moffitt Cancer Center

Moffitt Genetic Neuro-oncology Clinic • Tampa, FL

Montefiore Medical Center/Children’s Hospital at Montefiore

The Neurofibromatosis Center at Montefiore • Bronx, NY

Nationwide Children’s Hospital

Neurofibromatosis Clinic • Columbus, OH

Nicklaus Children’s Hospital

Nicklaus Children’s Hospital Neurofibromatosis Center • Miami, FL

NYU Langone Medical Center

The Comprehensive NF Center at NYU Langone • New York, NY

Ohio State University

Neurofibromatosis Clinic • Columbus, OH

Rainbow Babies and Children’s Hospital

Multidisciplinary Neurocutaneous Syndromes Clinic • Cleveland, OH

Rutgers New Jersey Medical School

The Neurofibromatosis Center of New Jersey • Newark, NJ

Seattle Children’s Hospital

Neurofibromatosis Clinic • Seattle, WA

SSM Health Cardinal Glennon Children’s Hospital

Neurofibromatosis Clinic • St. Louis, MO

St. Joseph’s Regional Medical Center

Neurofibromatosis Diagnostic and Treatment Center • Paterson, NJ

Texas Children’s Hospital/Baylor

Neurofibromatosis Clinic • Houston, TX

The Children’s Hospital of Philadelphia

University of Pennsylvania Neurofibromatosis Program • Philadelphia, PA

University of Alabama at Birmingham

UAB Neurofibromatosis Clinic • Birmingham, AL

University of Chicago

Neurofibromatosis Program • Chicago, IL

University of Iowa Hospitals and Clinics

Neurofibromatosis Clinic • Iowa City, IA

University of Kentucky

Kentucky Neuroscience Institute Neurofibromatosis Clinic • Lexington, KY

University of Minnesota Masonic Children’s Hospital

Journey Clinic • Minneapolis, MN

University of North Carolina Hospitals

UNC Hospitals Neurofibromatosis Clinic • Chapel Hill, NC

University of Oklahoma Health Sciences Center

University of Oklahoma NF Clinic • Oklahoma City, OK

University of Utah

Neurofibromatosis Clinic • Salt Lake City, UT

UT Southwestern/Children’s Health Dallas

Neurofibromatosis Clinic • Dallas, TX

Washington University/St. Louis Children’s Hospital

Washington University NF Clinical Program • St. Louis, MO

Other Specialists

Click on state to view healthcare professionals not in our NF Clinic Network. Please note this is not a complete list and the Children's Tumor Foundation does not endorse any providers listed.

If you or your child has seen additional providers you would like to add to our database, please submit info below.

If you are a healthcare professional providing care to NF patients and wish to be listed in this database, please contact Heather Radtke at hradtke@ctf.org

.

Alaska

Seattle Children’s Hospital
Alaska Genetics Clinic • Anchorage, AK

California

University of California, Los Angeles
UCLA Brain Tumor Center Multidisciplinary NF2 Clinic • Los Angeles, CA

UC Irvine Medical Center
Neuro-Oncology Program • Orange, CA

Connecticut

Yale-New Haven Children’s Hospital
Pediatric Specialty Center • New Haven, CT

Delaware

Nemours/Alfred I. DuPont Hospital for Children
Nemours/Alfred I. DuPont Hospital for Children • Wilmington, DE

Florida

University of South Florida
USF Health, Division of Genetics and Metabolism • Tampa, FL

University of Florida
Dept of Pediatrics Division of Genetics and Metabolism • Gainesville, FL

Georgia

MCG Pediatric Genetics
MCG Pediatric Genetics • Augusta, GA

Hawaii

Hawaii Community Genetics
Kapiolani Medical Specialists • Honolulu, HI

Idaho

Saint Luke’s Children’s Specialty Center
St. Luke's Children's Genetics Clinic • Boise, ID

Illinois

Southern Illinois University School of Medicine
General Genetics Clinic • Springfield, IL

Indiana

Indiana University
Indiana University Health Neurofibromatosis Clinic • Indianapolis, IN

Indiana University Health Physicians
IU Health Neuroscience Center • Indianapolis, IN

Kansas

University of Kansas Medical Center
Pediatric Neurology • Kansas City, KS

Massachusetts

Mass Eye and Ear Infirmary
Neuro-Ophthalmology • Boston, MA

Maine

Eastern Maine Medical Center
Pediatric Specialty Clinic • Bangor, ME

Mississippi

CareFirst Internal Medicine
CareFirst Internal Medicine • Flowood, MS

University of Mississippi Medical Center
University of Mississippi Medical Center • Jackson, MS

Montana

Shodair Children’s Hospital
Shodair Children's Hospital • Helena, MT

New Hampshire

Dartmouth-Hitchcock Medical Center
Pediatric Medical Genetics • Lebanon, NH

Nevada

University of Nevada School of Medicine
University of Nevada School of Medicine • Las Vegas, NV

Oregon

Oregon Health and Science University
Oregon Health and Science University • Portland, OR

Shriners Hospital for Children
Shriners Hospital for Children • Portland, OR

Randall Children’s Hospital at Legacy Emanuel
Children's Development and Rehabilitation • Portland, OR

Pennsylvania

Pittsburgh Ear Associates - Allegheny General
Pittsburgh Ear Associates • Pittsburgh, PA

Rhode Island

Rhode Island Hasbro Children’s Hospital
Children's Neurodevelopment Center • Providence, RI

Tennessee

Le Bonheur Childrens Medical Center
UT Le Bonhear Pediatric Specialist • Memphis, TN

Vanderbilt University
Division of Medical Genetics and Genomic Medicine • Nashville, TN

Washington

Seattle Head and Neck Clinic
Seattle Head and Neck Clinic • Seattle, WA

Radio Surgery at Swedish Medical Center
Radio Surgery at Swedish Medical Center • Seattle, WA

University of Washington
University of Washington • Seattle, WA

Virginia Mason Medical Center
Listen for Life Center at Virginia Mason • Seattle, WA

UW Medicine Harborview Medical Center
UW Medicine Harborview Medical Center • Seattle, WA