We know that, for some patients, it can be challenging to find a local NF expert. With that in mind we are excited to launch “Ask the Expert,” an online, interactive webinar series. Videos of NF experts speaking about a variety of topics related to NF will be posted online. After each new video is posted, we will invite you to submit any questions about what you’ve learned for two weeks. These questions and answers will then be posted online along with the video for everyone’s benefit! 

It is our goal to empower the NF community by providing the latest in NF research and knowledge. Please join us! 

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NF1, NF2, and Schwannomatosis: A Comparison

Apr 20, 2018, Posted in Education, NF1, NF2, Schwannomatosis

In today's video Patient Support Coordinator Kate Kelts reviews the differences between NF1, NF2, and Schwannomatosis.

Resiliency Skills with Ana-Maria Vranceanu, PhD

Mar 21, 2018, Posted in Pediatric, Research, Coping, NF1, NF2

In this webinar Dr. Vranceanu brings to light some exciting research about the power of the mind to overcome obstacles and cope with pain and illness.

Information about the NF Registry

Feb 21, 2018, Posted in Education, Registry

What is the NF Registry and why should it matter to you?


Use the submission form to ask questions related to the latest webinar or future webinars, or make suggestions for upcoming topics and/or speakers.

Upcoming Events

NF Walk Cincinnati

May 19, 2018 • Mason, OH