May 4-6, 2018
275 Baker Street NW
The Children's Tumor Foundation's NF Forum is a national patient and family gathering hosted annually in different cities across the United States. The NF Forum allows those living with NF, and their families, to connect, support, and learn from each other while attending seminars on relevant topics pertaining to neurofibromatosis. The 2018 NF Forum features NF experts covering the most current information on the latest research for treatments of NF and how to compare treatment options, transitioning from peadiatric to adult care, practical tips for managing your care and coping skills for living with NF. Participants will have opportunities throughout the sessions to ask questions and explore ways to contribute to expanding the knowledge of NF and and how to get involved in patient centered outcomes research. There will be fun activities, meals, social time with friends and family, and much more!
Registration opens on January, 2018. See photos from our 2016 event and adults meet up.
A block of rooms has been reserved for May 2, 2018 - May 7, 2018. The special room rate of $140 will be available until April 12th or until the group block is sold-out, whichever comes first. To make your hotel reservation click here.
This NF Patient Centered Outcomes Research Forum is partially funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EAIN-7142)