I have known that I have neurofibromatosis, or NF, for as long as I can remember. I was diagnosed as a baby at a time when even doctors knew very little about this disease. With no knowledge about what the future could hold, my family searched for answers, where few were to be found.
My parents got involved with the National Neurofibromatosis Foundation, now called the Children’s Tumor Foundation, not long after it was founded in 1978. My mother, Joan Engel, served as the Foundation’s president from 1981- 1984. As a child growing up, I had the benefit of this Foundation, and the knowledge, research, and community that it brought to my family. Now I have the privilege to serve the Foundation on its Board of Directors.
In an early Foundation newsletter, published in 1982, not long after I turned thirteen, I wrote the letter to the right to encourage people to give to the Foundation, and join my parents and me in our search for a cure for NF. Today I ask that you join me in giving now. An anonymous donor has generously offered to match your gift dollar for dollar, from now until year end, up to $400,000.
This year we celebrate the Foundation’s 40-year history as a beacon of hope for over 2.5 million people worldwide who live with NF. Because of your support and participation, today we are leading the way in the fight to find treatments and an end to NF. As we look to the future, here is what we envision: biomarkers, targeted therapeutics, approved drugs for all types of NF, tumors shrinking, and significantly improved lives for the millions of children and adults living with NF. We will not stop until we have provided options for ALL people living with all forms of NF.
For over 40 years, thanks to the generosity and hard work of donors and supporters like you, we have seen incredible advances in NF research, and tremendous growth in our Foundation’s programs for NF patients. This is a time of great optimism for NF treatments—tumors are shrinking in clinical trials, and we are closer than ever to the first FDA-approved drug for NF!
Our work is not done. Much has been accomplished, but we urgently need your help to make treatments and a cure a reality for all who live with NF. Please, join us in our fight to end NF.
Member, Children’s Tumor Foundation Board of Directors
Seeing is Believing
This holiday season, we believe that together we can find an end to NF! Together we are transforming lives and building brighter futures for millions of people like Jane Constable, Philip Moss and their families. Read about Jane and Philip and join us in celebrating the tremendous success they have seen since their enrollment in the clinical trial of the MEK inhibitor selumetinib (AZD6244 hydrogen sulfate) at the National Institutes of Health.
Make a Donation
The Children's Tumor Foundation is a Four-Star Charity rated by Charity Navigator. When you give to CTF this holiday season, you can be certain that we maintain the highest standards to allocate donor dollars wisely to accomplish our mission to end NF.
Visit our Financial Responsibility page to learn more.
The Children's Tumor Foundation proudly participates in #GivingTuesday, a global day of giving. You can join the movement by making a donation to the Children's Tumor Foundation, and inspire others to give by sharing #givingtuesday on social media.
Change your social media profile picture and spread the word this holiday season. You can also view more CTF logos and graphics in our Resource Library.
Shop to End NF
Looking for that special holiday present? Give a gift that supports our mission to fund critical research to one day end NF.
Wear NF Awareness on your sleeve year-round! Find CTF-branded t-shirts, hats, bags, and so much more at the Children's Tumor Foundation store.
You can make a contribution to the Children's Tumor Foundation every time you shop on Amazon. To get started, simply visit smile.amazon.com and select CTF from the list of available charitable organizations. AmazonSmile uses your same existing Amazon account and remembers your favorite charity for every future purchase.
Find the best coupons and deals to your favorite stores (including Amazon, Target, Macy's, Best Buy and more), and when you shop a donation gets made to the Children's Tumor Foundation. It's easy!
You can support the Children's Tumor Foundation with your Ralphs Supermarkets Rewards Card! A percentage of your purchase will go to help end NF. Simply log into your account and select CTF as your designated beneficiary.