2019 Boston Neurofibromatosis Symposium
Mar 30, 2019
8:15am - 1:00pm • Boston, MA
With our Youth Development Program, children, teens, and young adults can join in the mission of the Children's Tumor Foundation to make a difference in the lives of millions living with NF. Schools can host events through our Classrooms for a Cure program, teens and young adults can attend the NF Camp, and kids can even create their own fundraisers as part of our Do-it-Yourself (DIY) Kids program. Additionally our Mentorship Program allows young NF Heroes to connect with older NF Heroes, giving them someone to look up to, seek advice from, or simply just a friend.
Classrooms for a Cure events are conducted in schools, camps, or other youth organizations in your community with kids under 13. Fundraising from your event benefits research to find effective treatments and a cure for NF, and your students or school have the opportunity to win awards and recognition for your efforts. Your school can choose between a Hero Dash event (geared toward elementary schools) or a Change for NF fundraiser (for elementary/middle schools).
NF Camp is the annual summer camp of the Children's Tumor Foundation, dedicated to teens and young adults living with neurofibromatosis (NF). For over 20 years we have hosted this week-long experience for teens and young adults ages 12 to 22. NF Camp takes place on the third or fourth week of July (6 nights/6 days) in Salt Lake City, Utah. NF Camp is not just about the fun-filled activities, it is a chance to make lasting friendships with other people who understand what it's like to be a young person with NF.
NF Mentors are not only peers, they are friends to the children and teens who look up to them, learn from them, and confide in them. NF Mentors are dedicated young adults with NF who have completed a full year of mentorship training. Through the NF Mentorship Program, a young NF Mentee will find support, understanding, and inspiration from an NF Mentor.
Meet Moxie and Sparx, CTF's friendly new mascots who are here to cheer you on! Download a Coloring Book for Kids HERE and watch for more Moxie and Sparx materials for kids coming soon!
Parents of children with NF1 can find Moxie and Sparx featured throughout the NF Parent Guidebook, a home-based, 160-page resource designed to provide support and education to you and your family.