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Duty Free Americas and the Falic Family Foundation Host Golf and Tennis Charity Event That Raises $325,000 for NF Research

Feb 1, 2019, Posted in Fundraiser, Awareness, Community, NF Hero, NF2

The Children’s Tumor Foundation is exceptionally thankful for the generous support of Duty Free Americas and the Falic Family Foundation through their successful golf and tennis charity tournament held in Miami this week. Under sunny skies and with the participation of an enthusiastic and big-hearted crowd, over $325,000 was raised to support our mission to fund critical NF research, with more donations expected to come in following the event. We are particularly grateful for the leadership in this effort shown by Simon Falic, Jerome Falic, and Leon Falic and the entire Falic family.

Call for Applications for the class of 2019 Francis S. Collins Scholars

Jan 31, 2019, Posted in Outside Opportunities, NF1, Science

The Neurofibromatosis Therapeutic Acceleration Program (NTAP) is now accepting applications for the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. The Collins Scholars program brings together a community of exceptionally well-trained clinician scientists who will be leaders in the field of NF1 research.

February 20 Student Benefit Concert Music for a Better World at Manhattan School of Music

Jan 23, 2019, Posted in Fundraiser, Awareness, Community, Press Release

In support of the Children’s Tumor Foundation

New York, New York -- (January 23, 2019) Students of Manhattan School of Music (MSM) present a benefit concert, MUSIC FOR A BETTER WORLD, at Manhattan School of Music (MSM) on February 20, 2019, to raise awareness about the Children’s Tumor Foundation (CTF), a nonprofit whose mission is to end neurofibromatosis (NF) through research.

Stories of NF: Dylan T.

Jan 22, 2019, Posted in NF1, NF Hero

When Dylan was eighteen months old, we found out he had NF. He was failing to thrive and developed strabismus at age 4. Even after three surgeries in each eye, he lost the ability to see out of his right eye while the left one is open. He also lost all the useful hearing on the right by age eight and is now completely deaf on that side. These are nerve-related losses that have no treatment.... yet!.

Two Counties, One Cause: High School students raise $20,000 for NF research

Jan 15, 2019, Posted in Fundraiser, Awareness, Community

For the third year, Tappan Zee High School hosted the annual “Two Counties, One Cause” basketball tournament on Friday, Jan. 11 and Saturday, Jan.12, a fundraiser to support the Children’s Tumor Foundation. The tournament, which featured six teams in the inaugural event, has grown to a field of 10 this year, comprised of five teams from Westchester County and five from Rockland County. Also playing for the first time is the Tappan Zee girls varsity basketball team, taking on Sleepy Hollow on Friday night. This year, the students raised $20,000.