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Honorees include philanthropist Carol Harrison Kalagher, NIH Director Francis S. Collins, and NF Ambassador McKinnon Galloway. Festivities to take place at the renowned American Museum of Natural History in NYC on October 22.
The Pershing Square Sohn Cancer Research Alliance (PSSCRA) will open for applications for its 2019 Pershing Square Sohn Prize for Young Investigators in Cancer Research on October 1st, 2018. At least six New York City-area-based scientists will each be awarded $200,000/year – for up to three years – to empower them to pursue groundbreaking research.
The Children’s Tumor Foundation (CTF) is pleased to announce the initiation of a research program in gene-based therapeutic approaches for the treatment of neurofibromatosis type 1 (NF1). This initiative begins through this request for applications (RFA), with the first goal to fund two proof-of-principle studies in NF1 gene editing. Funding for each study will be $240,000 total (inclusive of 10% indirect costs) for a duration of two years.
I was 17 years old when I began feeling pain in my leg. I was feeling so much pain that I had to take painkillers every day and get massages from my friend. After two years in pain, I reached out to my doctors and told them what was happening. They did an MRI and found a schwanomma in my back. Then I told them that I was not hearing well out of one ear, so they did one more MRI of my head. The diagnosis came fast: I had NF2. It did not break me, but my family was devastated. I was the strong one, the one who always believed I will never lose anything. I did not want to let this disease change anything in my life, but now it has changed a lot.
Every year, one baseball player from each MLB team who best represents the game of baseball through extraordinary character, community involvement, philanthropy and positive contributions, both on and off the field, is nominated for the prestigious Roberto Clemente Award. We're excited to share that Colorado Rockies player Ian Desmond has again been nominated by his team for his tremendous support of the NF community!