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$15 Million for NF Research is Now Official

Sep 28, 2018, Posted in Advocacy

After receiving approval from both chambers of Congress earlier this month, President Trump signed the FY 2019 Defense and Labor, Health, and Human Services Appropriations conference report into law on Friday, September 28.  This sustained federal funding will allow us to further develop scientific data, break through barriers, and forge a pathway to end NF. 

House Appropriations Committee Advances $15 Million For NF Research

Jun 13, 2018, Posted in Advocacy, Latest News

Today, the U.S. House of Representatives Committee on Appropriations approved the FY 2019 Department of Defense Appropriations Bill, which includes $15 million in funding for Neurofibromatosis (NF) research. 

$15 MILLION FOR NF RESEARCH SIGNED INTO LAW

Mar 23, 2018, Posted in Advocacy

On Friday, March 23, President Donald Trump signed into law a $1.3 trillion omnibus spending bill to fund the government through September 30, 2018.  After over a year of continued advocacy by the Children’s Tumor Foundation, the agreement provides $15 million in funding for the Congressionally Directed Medical Research Program – Neurofibromatosis Research Program (CDMRP-NFRP).  This funding continues Congress’ long-standing support of medical research at the Department of Defense, complementary to the Children’s Tumor Foundation’s role as a leader in NF research and advocacy.  

Advocacy Update

Sep 11, 2017, Posted in Advocacy

Today, the Senate is expected to begin consideration of S. 1519, the FY 2018 National Defense Authorization Act (NDAA).  As reported by the Senate Armed Services Committee, S. 1519 would have negative impacts on U.S. Department of Defense medical research programs.  The Children’s Tumor Foundation has actively and continuously engaged for the past months in many avenues of bipartisan advocacy to nullify these specific provisions in the legislation, working with the Foundation’s Capitol Hill allies, the Defense Health Research Consortium, and other stakeholders to ensure no impact to the Department of Defense medical research programs. 

$15 MILLION FOR NF RESEARCH SIGNED INTO LAW

May 8, 2017, Posted in Advocacy

On Friday, May 5, President Donald Trump signed the $1 trillion omnibus spending bill into law.  This measure, which passed both chambers of Congress with bipartisan support, funds the government through the end of September.  Importantly, it provides $15 million in funding through the Congressionally Directed Medical Research Program - Neurofibromatosis Research Program (CDMRP-NFRP), which will support Children’s Tumor Foundation (CTF) work in NF research.