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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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May is nf awareness month: highlighting neurofibromatosis with 31 facts, a genetic condition affecting 1 in 2,000 births. visit ctf.org for more information.
Awareness

31 Facts About NF in 6 Languages

Expand your knowledge and contribute to raising awareness throughout NF Awareness Month with 31 Facts…
Woman smiling and holding an award at the children's tumor foundation event, with a banner reading "ending nf through research" in the background.
Awareness

Volunteer of the Year: Gwen Coverdale

National Volunteer Appreciation Week (April 21-27, 2024) may only happen once a year, but all…
A teenage boy stands with arms outstretched in front of a colorful mural of wings and a sun, wearing a casual t-shirt and shorts.
NF1Story of NF

Stories of NF: Owen M

Owen was diagnosed with NF 1 before the age of one. Shortly after, Owen started…
Healx announces investment from children's tumor foundation to advance neurofibromatosis type 1 treatments.
Collaborations & PartnershipsFeaturedFeatured EUGlobalNF1Press Release

Healx to receive investment from Children’s Tumor Foundation to advance Neurofibromatosis Type 1 treatments

Milestone payments from CTF will support advance of Healx’s lead compound, HLX-1502, to clinical trials…
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NF1Story of NF

Stories of NF: Blanchesca G

My mom has told me how I got NF and it was when I was…
Logo of the children's tumor foundation and sage bionetworks on a hexagonal background, promoting the end of neurofibromatosis (nf) through research.
Collaborations & PartnershipsScience & Research

Schwannomatosis Open Research Collaborative Computational Partnership Initiative

Need help analyzing schwannomatosis omics or other big data? Apply for the Schwannomatosis Open Research…
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AwarenessNF1Story of NF

Chiasm: A Published Essay by Heather Osterman-Davis

Heather Osterman-Davis is a published writer and an NF Mom. Her work has appeared in…
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NF1PharmaScience & ResearchUncategorized

Important News Regarding Koselugo and Fasting Requirements

We're pleased to share a significant update regarding Koselugo (selumetinib), a drug used to manage…
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FeaturedFeatured EUGlobalScience & Research

Young Investigator: Q&A with Clara Nogué about schwannomatosis cell lines

The Young Investigator Award (YIA) provides two-year salary support to early-career NF researchers to help…
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NF1Story of NF

Stories of NF: Charlie H

Charlie was diagnosed at nine months old through genetic testing. At five weeks old he…
AdvocacyNF1NF2-SWNSWN

$25 Million for NF Research in Congressional Spending Bill

Great news out of Washington, D.C.! Late last night, lawmakers released H.R. 2882, the Further…
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PublicationsScience & Research

Important Publication: Impact of trametinib on the neuropsychological profile of NF1

Traditional clinical research for tumor treatments relied on objective and tumor-specific measures, for example decreased…