Johns Hopkins All Children’s Hospital

Neurocutaneous Disorders Clinic
601 5th Street South, Suite 302
St. Petersburg, FL 33701

NF Clinic Network?: Yes
Contact Information:

Scheduling and other inquiries: 727-767-3675 or sstein21@jhmi.edu

Clinic Director's Name: Stacie Stapleton, MD
Clinic Coordinator Name: Sonja Steinbrueck, RN
Number of NF1 Patients Seen in Last Year: 46
Number of NF2 Patients Seen in Last Year: 1
Number of Schwannomatosis Patients Seen in Last Year:0
Total number of patients seen last year (includes other related diagnoses): 1
Patient Age Breakdown:98% <18 yrs
2% 18 yrs or older
Does the clinic see adults for routine NF-related care?: No
Does the clinic enroll patients for onsite research?: No
Does the clinic inform patients about outside research?: Yes

Specialties

NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous neurofibromas, Genetics, Learning disabilities or developmental delays, Pain, Psychosocial