Boston Children’s Hospital

Multidisciplinary Neurofibromatosis Program
300 Longwood Avenue, Fegan 4
Boston, MA 02115

NF Clinic Network?: Yes
Contact Information:

Scheduling and other inquiries: 617-355-6394 or

Clinic Director's Name: David Miller, MD, PhD, FAAP, FACMG
Clinic Coordinator Name: Caroline McGowan, MS, CGC, LGC
Number of NF1 Patients Seen in Last Year: 423
Number of NF2 Patients Seen in Last Year: 6
Number of Schwannomatosis Patients Seen in Last Year:0
Total number of patients seen last year (includes other related diagnoses): 6
Patient Age Breakdown:90% <18 yrs
10% 18 yrs or older
Does the clinic see adults for routine NF-related care?: No
Does the clinic enroll patients for onsite research?: Yes
Does the clinic inform patients about outside research?: Yes


NF Type: NF1, NF2
Ages: Pediatric
Areas of Focus: Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies