Ann and Robert H. Lurie Children’s Hospital of Chicago

Neurofibromatosis Clinic
225 East Chicago Avenue, Box #59
Chicago, IL 60611

NF Clinic Network?: Yes
Contact Information:

Scheduling: 312 227-6120

Other inquiries: 312-227-6769

Clinic Director's Name: Joel Charrow, MD and Robert Listernick, MD
NF Clinic Days: Weekly
Clinic Coordinator Name: Allison Goetsch, MS, CGC
Number of NF1 Patients Seen in Last Year: 227
Number of NF2 Patients Seen in Last Year: 1
Number of Schwannomatosis Patients Seen in Last Year:0
Total number of patients seen last year (includes other related diagnoses): 1
Patient Age Breakdown:97% <18 yrs
3% 18 yrs or older
Does the clinic see adults for routine NF-related care?: No
Does the clinic enroll patients for onsite research?: No
Does the clinic inform patients about outside research?: Yes


NF Type: NF1, NF2
Ages: Pediatric
Areas of Focus: Cutaneous neurofibromas, Genetics, Plexiform Neurofibromas