Children’s Hospital Colorado

Neurofibromatosis Program
13123 E. 16th Avenue, B155
Aurora, CO 80045

NF Clinic Network?: Yes
Contact Information:

Scheduling: 720-777-6895

Other inquiries: 720-777-6098 or nfclinic@childrenscolorado.org 

Clinic Director's Name: Jennifer Janusz, PsyD, ABPP-Cn; Carolyn Green, MD
NF Clinic Days: Weekly Mondays
Clinic Coordinator Name: Tina Haws, BSN, RN
Number of NF1 Patients Seen in Last Year: 203
Number of NF2 Patients Seen in Last Year: 3
Number of Schwannomatosis Patients Seen in Last Year:0
Total number of patients seen last year (includes other related diagnoses): 3
Patient Age Breakdown:98% <18 yrs
2% 18 yrs or older
Does the clinic see adults for routine NF-related care?: No
Does the clinic enroll patients for onsite research?: No
Does the clinic inform patients about outside research?: Yes

Specialties

NF Type: NF1, NF2
Ages: Pediatric
Areas of Focus: Cutaneous neurofibromas, Dystrophic scoliosis, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies