CHOC Children’s Hospital

CHOC Neurofibromatosis Clinic
1201 W. La Veta
Orange, CA 92868

NF Clinic Network?: Yes
Contact Information:

Scheduling and other inquiries: 714-288-3500

Clinic Director's Name: Neda Zadeh, MD, FAAP, FACMG
NF Clinic Days: Tuesd/Wedn; every other month for multidisciplinary; also seen in genetics clinic
Clinic Coordinator Name: Narda Hernandez, BS
Number of NF1 Patients Seen in Last Year: 129
Number of NF2 Patients Seen in Last Year: 2
Number of Schwannomatosis Patients Seen in Last Year:1
Total number of patients seen last year (includes other related diagnoses): 2
Patient Age Breakdown:90% <18 yrs
10% 18 yrs or older
Does the clinic see adults for routine NF-related care?: Yes
Does the clinic enroll patients for onsite research?: No
Does the clinic inform patients about outside research?: Yes

Specialties

NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous neurofibromas, Genetics, Learning disabilities or developmental delays, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies