Children’s Hospitals and Clinics of Minnesota

Neurocutaneous Syndromes Clinic
2530 Chicago Ave South
Minneapolis, MN 55404

NF Clinic Network?: Yes
Contact Information:

Scheduling and other inquiries: 612-813-7240

Clinic Director's Name: Marcelo Vargas, MD and Elizabeth Siqveland, APRN-CNP
Clinic Coordinator Name: Dinel Pond, MS, CGC
Number of NF1 Patients Seen in Last Year: 102
Number of NF2 Patients Seen in Last Year: 1
Number of Schwannomatosis Patients Seen in Last Year:0
Total number of patients seen last year (includes other related diagnoses): 1
Patient Age Breakdown:95% <18 yrs
5% 18 yrs or older
Does the clinic see adults for routine NF-related care?: No
Does the clinic enroll patients for onsite research?: No
Does the clinic inform patients about outside research?: Yes


NF Type: NF1, NF2
Ages: Pediatric
Areas of Focus: Cutaneous neurofibromas, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies