Children’s National Health System

Jennifer and Daniel Gilbert NF Institute
111 Michigan Avenue, NW
Washington, DC 20010
Click to Visit Clinic Website

NF Clinic Network?: Yes
Contact Information:

Scheduling: 202-476-3611

Other inquiries: 202-476-2120

Clinic Director's Name: Miriam Bornhorst, MD
NF Clinic Days: Weekly Mondays and 1st, 3rd & 4th Tuesdays and one Thursday a month
Clinic Coordinator Name: Peter Shibuya, PNP
Number of NF1 Patients Seen in Last Year: 319
Number of NF2 Patients Seen in Last Year: 3
Number of Schwannomatosis Patients Seen in Last Year:3
Total number of patients seen last year (includes other related diagnoses): 3
Patient Age Breakdown:92% <18 yrs
8% 18 yrs or older
Does the clinic see adults for routine NF-related care?: Yes
Does the clinic enroll patients for onsite research?: Yes
Does the clinic inform patients about outside research?: Yes


NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies