Cincinnati Children’s Hospital Medical Center

The Cincinnati Neurofibromatosis Clinic
3333 Burnet Ave, Division of Human Genetics, ML 4006
Cincinnati, OH 45229
Click to Visit Clinic Website

NF Clinic Network?: Yes
NF Consortium Site? Yes - click here for more info
Contact Information:

Scheduling: 513-636-1861 or jody.poppe@cchmc.org 

Other Inquiries: 513-636-8826 or geraldine.kelly-mancuso@cchmc.org

Clinic Director's Name: Elizabeth Schorry, MD and Carlos Prada, MD
Clinic Coordinator Name: Geri Kelly, BSN, RN, CPN
Number of NF1 Patients Seen in Last Year: 317
Number of NF2 Patients Seen in Last Year: 17
Number of Schwannomatosis Patients Seen in Last Year:5
Total number of patients seen last year (includes other related diagnoses): 17
Patient Age Breakdown:77% <18 yrs
23% 18 yrs or older
Does the clinic see adults for routine NF-related care?: Yes
Does the clinic enroll patients for onsite research?: Yes
Does the clinic inform patients about outside research?: Yes

Specialties

NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies