Cleveland Clinic Foundation

Neurofibromatosis Center
9500 Euclid Avenue, S60
Cleveland, OH 44195

NF Clinic Network?: Yes
Contact Information:

Scheduling: 216-636-5860

Other Inquiries: 216-445-8179

Clinic Director's Name: Manikum Moodley, MD, MBChB; A.David Rothner, MD
Clinic Coordinator Name: Kristin Hackeman, BSN, RN, CPEN
Number of NF1 Patients Seen in Last Year: 104
Number of NF2 Patients Seen in Last Year: 5
Number of Schwannomatosis Patients Seen in Last Year:1
Total number of patients seen last year (includes other related diagnoses): 5
Patient Age Breakdown:81% <18 yrs
19% 18 yrs or older
Does the clinic see adults for routine NF-related care?: Yes
Does the clinic enroll patients for onsite research?: No
Does the clinic inform patients about outside research?: Yes


NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous neurofibromas, Learning disabilities or developmental delays, Plexiform Neurofibromas, Psychosocial, Vasculopathies