Florida Hospital for Children

Neurofibromatosis Clinic
601 E. Rollins Street
Orlando, FL 32803

NF Clinic Network?: Yes
Contact Information:

Scheduling and other inquiries: 407-303-7945 or kara.colson@flhosp.org

Clinic Director's Name: Fouad Hajjar, MD
Clinic Coordinator Name: Kara Colson, RN
Number of NF1 Patients Seen in Last Year: 199
Number of NF2 Patients Seen in Last Year: 3
Number of Schwannomatosis Patients Seen in Last Year:0
Total number of patients seen last year (includes other related diagnoses): 3
Patient Age Breakdown:80% <18 yrs
20% 18 yrs or older
Does the clinic see adults for routine NF-related care?: Yes
Does the clinic enroll patients for onsite research?: No
Does the clinic inform patients about outside research?: Yes


NF Type: NF1, NF2
Ages: Pediatric, Adult
Areas of Focus: Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies