Golisano Children’s Hospital at University of Rochester Medical Center
Comprehensive Neurofibromatosis Clinic
601 Elmwood Avenue, Box 631
Rochester, NY 14642
| NF Clinic Network?: | Yes |
|---|---|
| Contact Information: | Scheduling and other inquiries: 585-275-2808 |
| Clinic Director's Name: | Alexander Paciorkowski, MD |
| Clinic Coordinator Name: | Carolyn Dickinson, PNP |
| Number of NF1 Patients Seen in Last Year: | 150 |
| Number of NF2 Patients Seen in Last Year: | 3 |
| Number of Schwannomatosis Patients Seen in Last Year: | 0 |
| Total number of patients seen last year (includes other related diagnoses): | 3 |
| Patient Age Breakdown: | 90% <18 yrs 10% 18 yrs or older |
| Does the clinic see adults for routine NF-related care?: | No |
| Does the clinic enroll patients for onsite research?: | No |
| Does the clinic inform patients about outside research?: | Yes |
Specialties
NF Type: NF1, NF2Ages: Pediatric, Adult
Areas of Focus: Genetics, Learning disabilities or developmental delays, Pain
