Golisano Children’s Hospital at University of Rochester Medical Center

Comprehensive Neurofibromatosis Clinic
601 Elmwood Avenue, Box 631
Rochester, NY 14642

NF Clinic Network?: Yes
Contact Information:

Scheduling and other inquiries: 585-275-2808

Clinic Director's Name: Alexander Paciorkowski, MD
Clinic Coordinator Name: Carolyn Dickinson, PNP
Number of NF1 Patients Seen in Last Year: 150
Number of NF2 Patients Seen in Last Year: 3
Number of Schwannomatosis Patients Seen in Last Year:0
Total number of patients seen last year (includes other related diagnoses): 3
Patient Age Breakdown:90% <18 yrs
10% 18 yrs or older
Does the clinic see adults for routine NF-related care?: No
Does the clinic enroll patients for onsite research?: No
Does the clinic inform patients about outside research?: Yes


NF Type: NF1, NF2
Ages: Pediatric, Adult
Areas of Focus: Genetics, Learning disabilities or developmental delays, Pain