Johns Hopkins University

Comprehensive Neurofibromatosis Center
600 N. Wolfe Street; Phipps 117
Baltimore, MD 21287
Click to Visit Clinic Website

NF Clinic Network?: Yes
NF Consortium Site? Yes - click here for more info
Contact Information:

Scheduling and other inquiries: 410-502-6732

Clinic Director's Name: Jaishri Blakeley, MD
NF Clinic Days: Comprehensive Clinic with surgery is held one Friday a month; Comprehensive Clinic without surgery is held one Monday a month. Follow-up Clinic is held weekly on Wednesday
Clinic Coordinator Name: Shannon Langmead, CRNP
Number of NF1 Patients Seen in Last Year: 300
Number of NF2 Patients Seen in Last Year: 100
Number of Schwannomatosis Patients Seen in Last Year:40
Total number of patients seen last year (includes other related diagnoses): 100
Patient Age Breakdown:35% <18 yrs
65% 18 yrs or older
Does the clinic enroll patients for onsite research?: Yes
Does the clinic inform patients about outside research?: Yes


NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies