Nemours/Alfred I. duPont Hospital for Children

Nemours RASopathy & Neurofibromatosis Clinic
1600 Rockland Road
Wilmington, DE 19803
Click to Visit Clinic Website

NF Clinic Network?: Yes
Contact Information:

Scheduling: 302-651-5916

Other Inquiries: 302-651-5476 or laura.baker@nemours.org

Clinic Director's Name: Karin Gripp, MD and Nagma Dalvi, MD
Clinic Coordinator Name: Laura Baker, MGC, LCGC
Number of NF1 Patients Seen in Last Year: 62
Number of NF2 Patients Seen in Last Year: 2
Number of Schwannomatosis Patients Seen in Last Year:1
Total number of patients seen last year (includes other related diagnoses): 2
Patient Age Breakdown:80% <18 yrs
20% 18 yrs or older
Does the clinic see adults for routine NF-related care?: Yes
Additional Notes: Clinic sees established patients ages 18-21; others referred to adult provider.
Does the clinic enroll patients for onsite research?: No
Does the clinic inform patients about outside research?: Yes

Specialties

NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Dermatology, Genetics, Learning disabilities or developmental delays, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies