SSM Health Cardinal Glennon Children’s Hospital

Neurofibromatosis Clinic
1465 South Grand Blvd
St. Louis, MO 63104

NF Clinic Network?: Yes
Contact Information:

Scheduling and other inquiries: 314-577-5397

Clinic Director's Name: Amelia Kirby, MD and Thomas Geller, MD
Clinic Coordinator Name: Julie Engel, RN
Number of NF1 Patients Seen in Last Year: 282
Number of NF2 Patients Seen in Last Year: 3
Number of Schwannomatosis Patients Seen in Last Year:1
Total number of patients seen last year (includes other related diagnoses): 3
Patient Age Breakdown:91% <18 yrs
9% 18 yrs or older
Does the clinic see adults for routine NF-related care?: Yes
Does the clinic enroll patients for onsite research?: No
Does the clinic inform patients about outside research?: Yes

Specialties

NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies