The Children’s Hospital of Philadelphia

University of Pennsylvania Neurofibromatosis Program
3501 Civic Center Blvd
Philadelphia, PA 19104
Click to Visit Clinic Website

NF Clinic Network?: Yes
NF Consortium Site? Yes - click here for more info
Contact Information:

Scheduling: Pediatric Clinic: 215-590-7012; Adult Clinic: 215-662-4740

Other inquiries: 215-590-7012 or

Clinic Director's Name: Michael Fisher, MD
Clinic Coordinator Name: Amanda Hall, BS, RN
Number of NF1 Patients Seen in Last Year: 482
Number of NF2 Patients Seen in Last Year: 23
Number of Schwannomatosis Patients Seen in Last Year:1
Total number of patients seen last year (includes other related diagnoses): 23
Patient Age Breakdown:85% <18 yrs
15% 18 yrs or older
Does the clinic see adults for routine NF-related care?: Yes
Does the clinic enroll patients for onsite research?: Yes
Does the clinic inform patients about outside research?: Yes


NF Type: NF1, NF2
Ages: Pediatric, Adult
Areas of Focus: Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies