University of Iowa Hospitals and Clinics

Neurofibromatosis Clinic
200 Hawkins Drive; Pediatric Specialty Clinic
Iowa City, IA 52242

NF Clinic Network?: Yes
Contact Information:

Scheduling: 319-356-2229 

Other inquiries: 319-356-2675

Clinic Director's Name: Pamela Trapane, MD, MME
Clinic Coordinator Name: Karin Panzer, MS, CGC
Additional Details:

We attempt to coordinate our visits when at all possible.

Number of NF1 Patients Seen in Last Year: 134
Number of NF2 Patients Seen in Last Year: 3
Number of Schwannomatosis Patients Seen in Last Year:2
Total number of patients seen last year (includes other related diagnoses): 3
Patient Age Breakdown:70% <18 yrs
30% 18 yrs or older
Does the clinic see adults for routine NF-related care?: Yes
Does the clinic enroll patients for onsite research?: Yes
Does the clinic inform patients about outside research?: Yes

Specialties

NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous neurofibromas, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Plexiform Neurofibromas, Psychosocial