University of Chicago

Neurofibromatosis Program
920 East 58th St. Room 901
Chicago, IL 60637

NF Clinic Network?: Yes
NF Consortium Site? Yes - click here for more info
Contact Information:

Scheduling: 773-702-6169

Other inquiries: 773-702-6487

Clinic Director's Name: James Tonsgard, MD
Clinic Coordinator Name: Cynthia MacKenzie, RN
Number of NF1 Patients Seen in Last Year: 175
Number of NF2 Patients Seen in Last Year: 23
Number of Schwannomatosis Patients Seen in Last Year:10
Total number of patients seen last year (includes other related diagnoses): 23
Patient Age Breakdown:44% <18 yrs
56% 18 yrs or older
Does the clinic see adults for routine NF-related care?: Yes
Does the clinic enroll patients for onsite research?: Yes
Does the clinic inform patients about outside research?: Yes


NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous neurofibromas, Dystrophic scoliosis, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies