University of North Carolina Hospitals

UNC Hospitals Neurofibromatosis Clinic
101 Manning Drive
Chapel Hill, NC 27517

NF Clinic Network?: Yes
Contact Information:

Scheduling: 984-974-1401

Other inquiries: 919-966-2528

Clinic Director's Name: Robert S Greenwood, MD and Timothy Gershon, MD, PhD
Clinic Coordinator Name: Betty Allen, BSN
Number of NF1 Patients Seen in Last Year: 339
Number of NF2 Patients Seen in Last Year: 17
Number of Schwannomatosis Patients Seen in Last Year:8
Total number of patients seen last year (includes other related diagnoses): 17
Patient Age Breakdown:52% <18 yrs
48% 18 yrs or older
Does the clinic see adults for routine NF-related care?: Yes
Does the clinic enroll patients for onsite research?: Yes
Does the clinic inform patients about outside research?: Yes


NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Dystrophic scoliosis, Genetics, Learning disabilities or developmental delays, Plexiform Neurofibromas