Children’s Hospital of Pittsburgh of UPMC

Neurofibromatosis Clinic
4401 Penn Avenue
Pittsburgh, PA 15224
Click to Visit Clinic Website

NF Clinic Network?: Yes
Contact Information:

Scheduling and other inquiries: 412-692-5520 

Clinic Director's Name: Kathy Gardner, MD and Jenna Gaesser, MD
Clinic Coordinator Name: Beth Heuer, CRNP
Number of NF1 Patients Seen in Last Year: 226
Number of NF2 Patients Seen in Last Year: 6
Number of Schwannomatosis Patients Seen in Last Year:3
Total number of patients seen last year (includes other related diagnoses): 6
Patient Age Breakdown:90% <18 yrs
10% 18 yrs or older
Does the clinic see adults for routine NF-related care?: Yes
Does the clinic enroll patients for onsite research?: Yes
Does the clinic inform patients about outside research?: Yes


NF Type: NF1, NF2
Ages: Pediatric, Adult
Areas of Focus: Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies