Washington University/St. Louis Children’s Hospital

Washington University NF Clinical Program
One Children's Place
St. Louis, MO 63110
Click to Visit Clinic Website

NF Clinic Network?: Yes
NF Consortium Site? Yes - click here for more info
Contact Information:

Scheduling and other inquiries: 314-454-6120 or NFClinic@wustl.edu.

Clinic Director's Name: David H. Gutmann, MD, PhD and Stephanie Morris, MD
Clinic Coordinator Name: Erika Ramirez, BSN, RN
Number of NF1 Patients Seen in Last Year: 244
Number of NF2 Patients Seen in Last Year: 5
Number of Schwannomatosis Patients Seen in Last Year:2
Total number of patients seen last year (includes other related diagnoses): 5
Patient Age Breakdown:87% <18 yrs
13% 18 yrs or older
Does the clinic see adults for routine NF-related care?: Yes
Does the clinic enroll patients for onsite research?: Yes
Does the clinic inform patients about outside research?: Yes

Specialties

NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous neurofibromas, Dermatology, Dystrophic scoliosis, ENT/vestibular schwannoma, Genetics, Learning disabilities or developmental delays, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Vasculopathies