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It is important to see healthcare providers who are familiar with NF, or provide resources about NF to your general practitioner.

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NF Clinic Network

The NF Clinic Network (NFCN) is the first nationwide network dedicated to improving clinical care and establishing best practices for treating those living with NF. The NFCN recognizes clinics in the US and Canada that provide comprehensive medical care to individuals with NF, foster patient education, and encourage participation in clinical research trials and the NF registry.

20,000

Patients each year

70

Clinics in the NF Clinic Network

11,000

Patients enrolled in the NF Registry

Find a Doctor

It is important to see healthcare providers who are familiar with NF, and there are several things to consider when choosing an NF provider. If you live in the US or Canada, to find an NF clinic near you, below is a listing of our NFCN clinics that can be filtered by different search fields. You may select clinics by location, patient age, clinical areas of specialty, and NF type, which includes neurofibromatosis type 1 (NF1), and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2. All providers listed are members of the NF Clinic Network (NFCN). If you do not find an NF provider in your area, please refer to the NF Collective for additional US-based listings or CTF Europe for NF providers in Europe. We continue to collaborate with clinicians in the global community. Please contact us for providers that may be available in your area.

If you do not have an NF clinic in your area, we encourage you to provide resources about NF to your primary care provider.

Resources for Doctor Visits

Talking With Your Pediatrician

Description

This chapter from CTF's NF Parent Guidebook offers tips to parents when speaking with a child's pediatrician.

This chapter from CTF's NF Parent Guidebook offers tips to...

CTF Patient Brochures

Description

A downloadable, printable one-sheet to share with individuals and groups interested in patient educational materials from the Children's Tumor Foundation

A downloadable, printable one-sheet to share with individuals and groups...

Finding a Healthcare Professional

Description

A checklist for individuals working to select an appropriate NF healthcare professional.

A checklist for individuals working to select an appropriate NF...

Nf collective logo on a white background.

NF Collective

The NF Collective is a group of organizations dedicated to improving the lives of NF patients and their families by providing accurate and reliable information about NF. The Children’s Tumor Foundation was the first national NF organization, started in 1978. Since that time, a number of organizations have been created to address various needs within the NF community, each with a specific focus, but all share the common goal of curing NF.

Clinic Blog Posts

Collaborations & PartnershipsCTF in the NewsNF Clinic Network (NFCN)Press Release
November 30, 2022

Children’s Tumor Foundation, UAMS Open Country’s First Adult Neurofibromatosis Clinic

LITTLE ROCK, AR — The Children’s Tumor Foundation (CTF) and the University of Arkansas for Medical Sciences (UAMS) announced the opening of the first CTF-sponsored, fully multidisciplinary clinic dedicated to…
AwarenessCollaborations & PartnershipsNF Clinic Network (NFCN)Press Release
October 14, 2021

Children’s Tumor Foundation Joins with UAMS Winthrop P. Rockefeller Cancer Institute to Pilot Clinic for Adults with Neurofibromatosis

The Children’s Tumor Foundation and the Winthrop P. Rockefeller Cancer Institute at the University of Arkansas for Medical Sciences are pleased to announce plans for the first dedicated Neurofibromatosis Adult…
NF Clinic Network (NFCN)NF1NF2-SWNScience & ResearchSWN
September 15, 2021

Two additional clinics added to the NF Clinic Network, helping NF patients in the United States and Canada

The Children’s Tumor Foundation is excited to announce two newly approved clinics to the NF Clinic Network (NFCN), including our first one in Canada! With these clinics, the NFCN now recognizes 67 NF affiliate…

NF Clinics in Europe

We understand how difficult it can be to find healthcare professionals who have experience diagnosing and caring for NF patients. Below you can search for clinics in Europe.