Get the Facts

It is estimated that more than 100,000 Americans have NF, making it more common than cystic fibrosis, Duchenne muscular dystrophy, and Huntington's disease combined. The Children's Tumor Foundation has many resources for you and we'd like you to think of us as your safe haven. 

Learn more about the distinct disorder that affects you or your loved one by visiting our NF1, NF2, or Schwannomatosis pages, or download one of our Newly Diagnosed brochures below (additional languages available in the Resource Library).

Find a Doctor

We understand how difficult it is to find healthcare professionals who have experience diagnosing and caring for NF patients. We are constantly working to expand our NF Clinic Network and add to the list of NF professionals available across the country.


Connect with other NF patients and families, get support, and learn from NF experts at our annual NF Forum or at one of many NF symposiums held around the country.

Get Involved

National programs like NF Walk, NF Endurance, and Do-It-Yourself program are great ways to empower yourself and your community in the fight for treatments and a cure for NF. It is also a way to meet others in your local NF community.

Join the NF Registry

Research is the key to diagnosing and treating NF. And the NF Registry is the key to research. If you have been diagnosed with any form of neurofibromatosis (including NF1, NF2, and schwannomatosis), or if your child has NF, unite with thousands of others with NF and join the NF Registry today.

When you sign up for the NF Registry, you can learn about and participate in advanced scientific research on all forms of NF.

Stay in Touch

Follow us on social media to get the latest news and information, ask questions or send comments, and connect with other members of the NF community.