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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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Awards & GrantsFeaturedFeatured EU

The Friedrich von Recklinghausen Award: Neurofibromatosis Tradition and Progress

The Children’s Tumor Foundation’s Friedrich von Recklinghausen Award is given to individuals in the professional…
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FeaturedFeatured EUPress Release

The Future of Rare Disease Starts Here: NF Leaders Gather in Washington, D.C.

More than 1,000 researchers, patients, and advocates to chart the next frontier in treatment and…
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FeaturedFeatured EUScience & Research

Help Fill the Gap to Fuel NF Research and Care

In the world of NF research and care, dedicated scientists and clinicians have long relied…
FeaturedFeatured EUNF EnduranceNF1Ways to Give

NFE Athlete Spotlight: Matthew Haas

Living with neurofibromatosis type 1 (NF1), Matthew Haas has found strength in every step, setting…
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AdvocacyTop StoryTop Story EU

Your Voice Was Heard: $25 Million for NF Research Proposed in New House Bill

The House of Representatives Committee on Appropriations has released its draft report for the Fiscal…
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Awards & GrantsFeaturedFeatured EUScience & Research

Attention NF Researchers: New Federal Funding Opportunities Available

NF (neurofibromatosis or schwannomatosis) is now eligible for two Department of Defense (DoD) research funding…
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AwarenessFeaturedFeatured EUNF SummitSWN

A Rare Connection at the NF Summit

From left: Dave, Dale, Jason That’s how Dale described the moment he stood alongside David…
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AwarenessFeaturedFeatured EUNF2-SWN

Running Toward Hope: Leanna’s Journey with NF2-SWN and the Road Ahead

Photo Credit: NYSENew York Stock Exchange 2024 Leanna was just 16 years old when her…
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AwarenessFeaturedFeatured EU

NF News Spring 2025 is Available Now

The new issue of NF News, the official newsletter of the Children's Tumor Foundation, is…
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FeaturedFeatured EUNF1Story of NF

Kendall Reeve: A Story of Strength and Hope

When Stephanie and Matthew Reeve welcomed their daughter Kendall into the world, they sensed something…
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CTF in the NewsFeaturedFeatured EUScience & Research

CTF Featured in Clinical Research News for Rethinking the Role of Nonprofits in R&D

The Children’s Tumor Foundation (CTF) was recently featured in Clinical Research News in an article…
Cover of the 2024 Impact Report by Children's Tumor Foundation, featuring a blue molecular structure with the text "Accelerating Discovery, Transforming Lives.
AwarenessTop StoryTop Story EU

Children’s Tumor Foundation 2024 Impact Report

The Children’s Tumor Foundation (CTF) has released its latest impact report, detailing significant progress in…