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CTF Strategic Plan 2023 - 2028

We envision a world without NF, and our strategic plan aims to make this vision a reality by driving research, expanding knowledge, and advancing care for the NF community.


Ending NF for more than 45 years

Historically, the Children’s Tumor Foundation has laid a firm foundation for the critical work ahead by building NF awareness, education, and community. This has complemented a robust emphasis on NF research funding and the building of essential networks. As we move forward, our unwavering focus is to lead and accelerate the innovation that ends NF.


Established Research and Networks


Lead and Accelerate Innovation


Develop Treatments and End NF

Strategic Plan Four Innovation Pillars

Our pledge to the NF community is an unwavering commitment to pioneering research, innovative funding, and groundbreaking drug development for all types of neurofibromatosis or schwannomatosis.

Develop More Drugs

Expand the research field, develop panels of drug selection tools, double the number of R&D grants, and launch revolutionary projects.

Accelerate Treatments

Expedite the discovery of life-changing therapies with an innovative preclinical hub-and-spoke model, the ultimate all-in-one solution for pharma and biotech pioneers.

Stronger Clinical Trials

Strengthen and accelerate the development and approval of drugs being evaluated in clinical trial consortia and/or platform trials.

Empower Stakeholders

Enhance the understanding of NF and the NF Registry, increase patient participation, and train ambassadors. Expand the NF Clinic Network and the number of physicians and specialists who treat NF, including adult care.

Plan Presentation

The Board of Directors of the Children’s Tumor Foundation approved a new 2023-2028 Strategic Plan in May of 2023. This webinar was a ‘Make NF Research Visible” event during NF Awareness Month. Panelists include CTF Board Members: Gabriel Groisman (Chair) Liz Rodbell (Vice-Chair) RB Harrison (Secretary) Annette Bakker, PhD (President)

The Time Is Now To End NF

Our Mission

Our Strategic Plan is fueled by you, our partners in the fight to end NF.

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