The NF Clinic Network (NFCN) is the first nationwide network dedicated to improving clinical care and establishing best practices for treating those living with NF. The NFCN recognizes clinics in the US and Canada that provide comprehensive medical care to individuals with NF, foster patient education, and encourage participation in clinical research trials and the NF registry.
Find a Doctor
It is important to see healthcare providers who are familiar with NF, or provide resources about NF to your general practitioner.
Search for a DoctorPlan for a Doctor VisitNF Clinic Network
20,000
Patients each year
70
Clinics in the NF Clinic Network
11,000
Patients enrolled in the NF Registry
Find a Doctor
It is important to see healthcare providers who are familiar with NF, and there are several things to consider when choosing an NF provider. If you live in the US or Canada, to find an NF clinic near you, below is a listing of our NFCN clinics that can be filtered by different search fields. You may select clinics by location, patient age, clinical areas of specialty, and NF type, which includes neurofibromatosis type 1 (NF1), and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2. All providers listed are members of the NF Clinic Network (NFCN).
If you do not find an NF provider in your area, please refer to the NF Collective for additional US-based listings or CTF Europe for NF providers in Europe. We continue to collaborate with clinicians in the global community. Please contact us for providers that may be available in your area.
If you do not have an NF clinic in your area, we encourage you to provide resources about NF to your primary care provider.
Although CTF makes every attempt to report current and accurate data, we cannot guarantee all information on our site.
If you need to update your clinic’s listing, please use this form to request the change(s).
NF Collective
The NF Collective is a group of organizations dedicated to improving the lives of NF patients and their families by providing accurate and reliable information about NF. The Children’s Tumor Foundation was the first national NF organization, started in 1978. Since that time, a number of organizations have been created to address various needs within the NF community, each with a specific focus, but all share the common goal of curing NF.
Resources for Doctor Visits
CTF Patient Brochures
Description
A downloadable, printable one-sheet to share with individuals and groups interested in patient educational materials from the Children's Tumor Foundation.
A downloadable, printable one-sheet to share with individuals and groups...
A downloadable, printable one-sheet to share with individuals and groups interested in patient educational materials from the Children's Tumor Foundation.
CTF Patient Brochures (Spanish)
Description
A Spanish translation of CTF's downloadable, printable one-sheet to share with individuals and groups interested in patient educational materials from the Children's Tumor Foundation.
A Spanish translation of CTF's downloadable, printable one-sheet to share...
A Spanish translation of CTF's downloadable, printable one-sheet to share with individuals and groups interested in patient educational materials from the Children's Tumor Foundation.
Talking With Your Pediatrician
Description
This chapter from CTF's NF Parent Guidebook offers tips to parents when speaking with a child's pediatrician.
This chapter from CTF's NF Parent Guidebook offers tips to...
This chapter from CTF's NF Parent Guidebook offers tips to parents when speaking with a child's pediatrician.
NF Clinics in Europe
We understand how difficult it can be to find healthcare professionals who have experience diagnosing and caring for NF patients. Below you can search for clinics in Europe.
NF Registry
NF is one of the world’s most common genetic disorders. But it takes many forms and can be hard to diagnose and treat. Research is the key. And the NF Registry is the key to research. If you have been diagnosed with any form of NF, please unite with thousands of others and join the NF Registry today.
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