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About the Foundation Fact Sheet

Description

Learn about the Children's Tumor Foundation in this informative one-page fact sheet.

Learn about the Children's Tumor Foundation in this informative one-page...

About the Foundation Fact Sheet (Spanish)

Description

A Spanish language trifold brochure highlighting the many programs of the Children's Tumor Foundation and our mission to end NF.

A Spanish language trifold brochure highlighting the many programs of...

About the Foundation Trifold Brochure

Description

A trifold brochure highlighting the many programs of the Children's Tumor Foundation and our mission to end NF.

A trifold brochure highlighting the many programs of the Children's...

About the Foundation Trifold Brochure (Spanish)

Description

A Spanish language trifold brochure highlighting the many programs of the Children's Tumor Foundation and our mission to end NF.

A Spanish language trifold brochure highlighting the many programs of...

CTF Annual Report

Description

The latest annual report of the Children’s Tumor Foundation features financial information, a summary of CTF programs, and an acknowledgment of our incredible family of donors.

The latest annual report of the Children’s Tumor Foundation features...

Planned Giving: The NF Legacy Society

Description

Learn more about leaving the Children’s Tumor Foundation in your will or estate planning in this informative brochure.

Learn more about leaving the Children’s Tumor Foundation in your...

NF Fact Sheet (Spanish)

Description

A Spanish fact sheet about all types of NF, which refers to neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN).

A Spanish fact sheet about all types of NF, which...

NF Q&A (Spanish)

Description

A Spanish translation of CTF's trifold brochure that covers frequently asked questions about all types of neurofibromatosis and schwannomatosis, collectively referred to as NF.

A Spanish translation of CTF's trifold brochure that covers frequently...

31 NF Facts in 6 Languages

Description

Expand your knowledge and contribute to raising awareness throughout NF Awareness Month with 31 Facts About NF. These bite-sized facts about NF are available at the links below in English, Spanish, French, German, Italian, and Dutch.

Expand your knowledge and contribute to raising awareness throughout NF...

NF Fact Sheet

Description

A fact sheet about all types of NF, which refers to neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN).

A fact sheet about all types of NF, which refers...

NF Infographic

Description

This infographic features colorful images, facts, and statistics about all types of neurofibromatosis and schwannomatosis.

This infographic features colorful images, facts, and statistics about all...

NF Q&A

Description

This trifold brochure from the Children's Tumor Foundations covers frequently asked questions about all types of NF.

This trifold brochure from the Children's Tumor Foundations covers frequently...

Archie Comics Sounds Like Music (Spanish)

Description

A Spanish translation of "Sounds Like Music," from Archie Comics and the Children's Tumor Foundation. Meet Grace, the first member of the Archie Comics universe living with NF2-related schwannomatosis.

A Spanish translation of "Sounds Like Music," from Archie Comics...

Color Jam Coloring Book for Kids

Description

These coloring pages feature our mascots, Moxie and Sparx, who are working with the Children's Tumor Foundation to end NF.

These coloring pages feature our mascots, Moxie and Sparx, who...

Color Jam Coloring Book for Kids (Spanish)

Description

These Spanish-language coloring pages feature our mascots Moxie and Sparx, who are working with the Children's Tumor Foundation to end NF.

These Spanish-language coloring pages feature our mascots Moxie and Sparx,...

Moxie & Sparx Flashcards

Description

Help teach others about NF! Download our NF Flashcards featuring our mascots Moxie and Sparx sharing facts about NF. These are perfect for teachers to give a lesson on NF, NF Heroes to share with their classmates, and parents to help answer questions from their kids. Download, print double-sided, cut out, and spread knowledge of NF!

Help teach others about NF! Download our NF Flashcards featuring...

Moxie and Sparx Explain NF1 (French)

Description

French translation of CTF's short comic for kids, Moxie & Sparx (Caffie and Nerfy) Explain NF1.

French translation of CTF's short comic for kids, Moxie &...

Understanding NF2-SWN Comic

Description

Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy Nguyen, who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s childhood struggle to understand his diagnosis and navigate tumors and progressive hearing loss.

Understanding NF2-SWN is an eight-page educational comic book that tells...

Understanding NF2-SWN Comic (Spanish)

Description

Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s childhood struggle to understand his diagnosis and navigate this difficult condition. This version has been translated into Spanish.

Understanding NF2-SWN is an eight-page educational comic book that tells...

Archie Comics’ Sounds Like Music

Description

Meet Grace, the first member of the Archie Comics universe living with NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2.

Meet Grace, the first member of the Archie Comics universe...

Café Au Lait – Children’s Picture Book

Description

Available for purchase at the CTF Store, this 36-page picture book tells the story of Enzo and his story about café au lait spots.

Available for purchase at the CTF Store, this 36-page picture...

Moxie and Sparx Explain NF1

Description

A short comic book for kids explaining NF1 with CTF mascots Moxie and Sparx.

A short comic book for kids explaining NF1 with CTF...

Moxie and Sparx Explain NF1 (Spanish)

Description

The Spanish translation of CTF's short comic book for kids explaining NF1 with CTF mascots Moxie and Sparx.

The Spanish translation of CTF's short comic book for kids...

NF Parent Guidebook

Description

A 160-page guidebook for parents of children living with NF1 from the Children's Tumor Foundation. Read more about the parent guidebook HERE. 

A 160-page guidebook for parents of children living with NF1...

NF Parent Guidebook (French)

Description

A French translation of CTF's 160-page guidebook for parents of children living with NF1. Read more about the Parent Guidebook HERE. 

A French translation of CTF's 160-page guidebook for parents of...

NF Parent Guidebook (Spanish)

Description

A Spanish translation of CTF's 160-page guidebook for parents of children living with NF1. Read more about the Parent Guidebook HERE. 

A Spanish translation of CTF's 160-page guidebook for parents of...

NF Registry

Description

This trifold brochure introduces the NF Registry and the many reasons patients living with any type of neurofibromatosis or schwannomatosis should join.

This trifold brochure introduces the NF Registry and the many...

NF Registry (French)

Description

This French-language trifold brochure shares information about the NF Registry and how patients living with any type of neurofibromatosis or schwannomatosis can join this important initiative.

This French-language trifold brochure shares information about the NF Registry...

NF Registry (Italian)

Description

This Italian-language trifold brochure shares information about the NF Registry and how patients living with any type of neurofibromatosis or schwannomatosis can join this important initiative.

This Italian-language trifold brochure shares information about the NF Registry...

NF Registry (Spanish)

Description

This Spanish-language trifold brochure shares information about the NF Registry and how patients living with any type of neurofibromatosis or schwannomatosis can join this important initiative.

This Spanish-language trifold brochure shares information about the NF Registry...

NF Registry (German)

Description

This German-language trifold brochure shares information about the NF Registry and how patients living with any type of neurofibromatosis or schwannomatosis can join this important initiative.

This German-language trifold brochure shares information about the NF Registry...

NF Registry (Portuguese)

Description

This Portuguese-language trifold brochure shares information about the NF Registry and how patients living with any type of neurofibromatosis or schwannomatosis can join this important initiative.

This Portuguese-language trifold brochure shares information about the NF Registry...

NF1 Fact Sheet (Spanish)

Description

A Spanish translation of CTF's handy one-page fact sheet that summarizes basic information about neurofibromatosis type 1 (NF1).

A Spanish translation of CTF's handy one-page fact sheet that...

NF1 Infographic

Description

This neurofibromatosis type 1 (NF1) infographic features colorful images, facts, and statistics about this genetic condition that affects 1 in every 2,500 births.

This neurofibromatosis type 1 (NF1) infographic features colorful images, facts,...

NF1 Learning Disabilities

Description

A brochure for families about NF1-associated learning disabilities and strategies for success at home and school.

A brochure for families about NF1-associated learning disabilities and strategies...

NF1 Learning Disabilities (French)

Description

A French translation of a CTF brochure for families about NF1-associated learning disabilities and strategies for success at home and school.

A French translation of a CTF brochure for families about...

NF1 Learning Disabilities (German)

Description

A German translation of a CTF brochure for families about NF1-associated learning disabilities and strategies for success at home and school.

A German translation of a CTF brochure for families about...

NF1 Learning Disabilities (Italian)

Description

An Italian translation of our brochure for families about NF1-associated learning disabilities and strategies for success at home and school.

An Italian translation of our brochure for families about NF1-associated...

NF1 Learning Disabilities (Spanish)

Description

A Spanish translation of our brochure for families about NF1-associated learning disabilities and strategies for success at home and school.

A Spanish translation of our brochure for families about NF1-associated...

NF1 Microdeletions

Description

This resource is for families who have a deletion of the NF1 gene causing neurofibromatosis type 1 (NF1). This is also referred to as NF1 microdeletion.

This resource is for families who have a deletion of...

NF1 Microdeletions (Spanish)

Description

A Spanish translation of CTF's resource is for families who have a deletion of the NF1 gene causing neurofibromatosis type 1 (NF1). This is also referred to as NF1 microdeletion.

A Spanish translation of CTF's resource is for families who...

NF1 Optic Pathway Gliomas

Description

This resource is for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have an optic pathway glioma (OPG).

This resource is for individuals with neurofibromatosis type 1 (NF1)...

NF1 Optic Pathway Gliomas (Spanish)

Description

A Spanish language resource for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have an optic pathway glioma (OPG).

A Spanish language resource for individuals with neurofibromatosis type 1...

NF1 Plexiform Neurofibromas

Description

This resource is for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have a plexiform neurofibroma.

This resource is for individuals with neurofibromatosis type 1 (NF1)...

NF1 Plexiform Neurofibromas (Spanish)

Description

A resource in Spanish for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have a plexiform neurofibroma.

A resource in Spanish for individuals with neurofibromatosis type 1...

2021 NF1 Diagnostic Criteria Update

Description

A summary of the 2021 diagnostic criteria update for neurofibromatosis type 1 (NF1).

A summary of the 2021 diagnostic criteria update for neurofibromatosis...

2021 NF1 Diagnostic Criteria Update (Spanish)

Description

A Spanish summary of the 2021 diagnostic criteria update for neurofibromatosis type 1.

A Spanish summary of the 2021 diagnostic criteria update for...

Café Au Lait – Children’s Picture Book

Description

Available for purchase at the CTF Store, this 36-page picture book tells the story of Enzo and his story about café au lait spots.

Available for purchase at the CTF Store, this 36-page picture...

Diagnosed with NF1

Description

An informative booklet for patients diagnosed with neurofibromatosis type 1 (NF1).

Listing Tags

An informative booklet for patients diagnosed with neurofibromatosis type 1...

Diagnosed with NF1 (Spanish)

Description

The Spanish version of CTF's informative booklet for patients diagnosed with neurofibromatosis type 1 (NF1).

The Spanish version of CTF's informative booklet for patients diagnosed...

MEK Inhibitors Patient Information Sheet

Description

Information for NF patients about MEK inhibitor drugs.

Information for NF patients about MEK inhibitor drugs.

MEK Inhibitors Patient Information Sheet (Spanish)

Description

A Spanish translation of our information for NF patients about MEK inhibitor drugs.

A Spanish translation of our information for NF patients about...

Moxie and Sparx Explain NF1

Description

A short comic book for kids explaining NF1 with CTF mascots Moxie and Sparx.

A short comic book for kids explaining NF1 with CTF...

Moxie and Sparx Explain NF1 (Spanish)

Description

The Spanish translation of CTF's short comic book for kids explaining NF1 with CTF mascots Moxie and Sparx.

The Spanish translation of CTF's short comic book for kids...

NF Parent Guidebook

Description

A 160-page guidebook for parents of children living with NF1 from the Children's Tumor Foundation. Read more about the parent guidebook HERE. 

A 160-page guidebook for parents of children living with NF1...

NF Parent Guidebook (French)

Description

A French translation of CTF's 160-page guidebook for parents of children living with NF1. Read more about the Parent Guidebook HERE. 

A French translation of CTF's 160-page guidebook for parents of...

NF Parent Guidebook (Spanish)

Description

A Spanish translation of CTF's 160-page guidebook for parents of children living with NF1. Read more about the Parent Guidebook HERE. 

A Spanish translation of CTF's 160-page guidebook for parents of...

NF1 Fact Sheet

Description

This handy one-page fact sheet summarizes basic information about neurofibromatosis type 1 (NF1).

This handy one-page fact sheet summarizes basic information about neurofibromatosis...

NF1 Guide for Adults

Description

A brochure for adults with NF1 covering important health and wellness considerations.

A brochure for adults with NF1 covering important health and...

NF1 Guide for Adults (Spanish)

Description

A Spanish-language brochure for adults with NF1 covering important health and wellness guidelines.

A Spanish-language brochure for adults with NF1 covering important health...

NF1 Guide for Educators

Description

An informational brochure for educators who may have students with NF in their classroom or school.

An informational brochure for educators who may have students with...

NF1 Guide for Educators (Spanish)

Description

This Spanish translation of CTF's informational brochure is for educators who may have students with NF in their classroom or school.

This Spanish translation of CTF's informational brochure is for educators...

Possible NF1: What are Café Au Lait Spots

Description

An informational handout about café au lait spots and a possible diagnosis of neurofibromatosis type 1 (NF1).

An informational handout about café au lait spots and a...

Possible NF1: What are Café Au Lait Spots (Spanish)

Description

A Spanish resource with information about café au lait spots and a resulting possible diagnosis of neurofibromatosis type 1 (NF1).

A Spanish resource with information about café au lait spots...

NF2-SWN Accelerator Impact Report

Description

A comprehensive report of the first year of CTF's NF2-SWN Accelerator Initiative, which is focused on improving drug selection through the development of innovative testing models and the development of gene therapy options that address the underlying genetic causes of NF2-related schwannomatosis.

A comprehensive report of the first year of CTF's NF2-SWN...

NF2-SWN Infographic

Description

This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and statistics about these rare genetic conditions.

Listing Tags

This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and...

2022 Diagnostic Criteria Update Summary (Spanish)

Description

A Spanish-language summary of the 2022 diagnostic criteria update for all types of schwannomatosis, including the condition previously known as neurofibromatosis type 2.

A Spanish-language summary of the 2022 diagnostic criteria update for...

Archie Comics Sounds Like Music (Spanish)

Description

A Spanish translation of "Sounds Like Music," from Archie Comics and the Children's Tumor Foundation. Meet Grace, the first member of the Archie Comics universe living with NF2-related schwannomatosis.

A Spanish translation of "Sounds Like Music," from Archie Comics...

Diagnosed with NF2-SWN

Description

A booklet created for anyone diagnosed with NF2-related schwannomatosis, or NF2-SWN (formerly called neurofibromatosis type 2).

A booklet created for anyone diagnosed with NF2-related schwannomatosis, or...

Diagnosed with NF2-SWN (Spanish)

Description

A Spanish translation of our booklet created for anyone diagnosed with NF2-related schwannomatosis, or NF2-SWN (formerly called neurofibromatosis type 2).

A Spanish translation of our booklet created for anyone diagnosed...

NF2-SWN Fact Sheet

Description

A summary of important facts about NF2-related schwannomatosis (NF2-SWN).

Listing Tags

A summary of important facts about NF2-related schwannomatosis (NF2-SWN).

NF2-SWN Fact Sheet (Spanish)

Description

A Spanish translation of CTF's important facts about NF2-related schwannomatosis (NF2-SWN).

Listing Tags

A Spanish translation of CTF's important facts about NF2-related schwannomatosis...

Understanding NF2-SWN Comic

Description

Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy Nguyen, who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s childhood struggle to understand his diagnosis and navigate tumors and progressive hearing loss.

Understanding NF2-SWN is an eight-page educational comic book that tells...

Understanding NF2-SWN Comic (Spanish)

Description

Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s childhood struggle to understand his diagnosis and navigate this difficult condition. This version has been translated into Spanish.

Understanding NF2-SWN is an eight-page educational comic book that tells...

2022 Diagnostic Criteria Update Summary

Description

A summary of the diagnostic criteria for all types of schwannomatosis, including NF2-related schwannomatosis. Prior to this 2022 update, these conditions were referred to as schwannomatosis and neurofibromatosis type 2.

A summary of the diagnostic criteria for all types of...

Archie Comics’ Sounds Like Music

Description

Meet Grace, the first member of the Archie Comics universe living with NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2.

Meet Grace, the first member of the Archie Comics universe...

NF2-SWN Accelerator Impact Report

Description

A comprehensive report of the first year of CTF's NF2-SWN Accelerator Initiative, which is focused on improving drug selection through the development of innovative testing models and the development of gene therapy options that address the underlying genetic causes of NF2-related schwannomatosis.

A comprehensive report of the first year of CTF's NF2-SWN...

Patient Engagement

Description

A trifold brochure about CTF's Patient Engagement program, which trains patients to take an active part in neurofibromatosis and schwannomatosis research.

A trifold brochure about CTF's Patient Engagement program, which trains...

What is a Clinical Trial

Description

A printable resource for those in the NF community seeking information about clinical trials and the factors to be considered before participating in a clinical trial.

A printable resource for those in the NF community seeking...

What is a Clinical Trial (Spanish)

Description

A Spanish translation of our printable resource for those in the NF community seeking information about clinical trials and the factors to be considered before participating in a clinical trial.

A Spanish translation of our printable resource for those in...

MEK Makes A Difference

Description

Stories of the clinical trial successes that led to the FDA approval of the MEK inhibitor selumetinib (Koselugo).

Stories of the clinical trial successes that led to the...

Top Ten NF Advancements in 2023

Description

A summary of the Children's Tumor Foundation's Top Ten Advancements in NF Research in 2023.

A summary of the Children's Tumor Foundation's Top Ten Advancements...

2022 Diagnostic Criteria Update Summary (Spanish)

Description

A Spanish-language summary of the 2022 diagnostic criteria update for all types of schwannomatosis, including the condition previously known as neurofibromatosis type 2.

A Spanish-language summary of the 2022 diagnostic criteria update for...

Schwannomatosis Fact Sheet (Spanish)

Description

A Spanish translation of CTF's one-page fact sheet about the conditions that fall under the umbrella term schwannomatosis, or SWN.

Listing Tags

A Spanish translation of CTF's one-page fact sheet about the...

2022 Diagnostic Criteria Update Summary

Description

A summary of the diagnostic criteria for all types of schwannomatosis, including NF2-related schwannomatosis. Prior to this 2022 update, these conditions were referred to as schwannomatosis and neurofibromatosis type 2.

A summary of the diagnostic criteria for all types of...

Diagnosed with Schwannomatosis

Description

COMING SOON. This patient brochure about all types of schwannomatosis is currently being updated. Please create an account and save this resource to your favorites to be notified when it is complete.

COMING SOON. This patient brochure about all types of schwannomatosis...

Schwannomatosis Fact Sheet

Description

A one-page fact sheet about the conditions that fall under the umbrella term schwannomatosis, or SWN.

Listing Tags

A one-page fact sheet about the conditions that fall under...

Schwannomatosis Infographic

Description

This schwannomatosis (SWN) infographic features colorful images, facts, and statistics about these rare genetic conditions.

This schwannomatosis (SWN) infographic features colorful images, facts, and statistics...

Color Jam Coloring Book for Kids

Description

These coloring pages feature our mascots, Moxie and Sparx, who are working with the Children's Tumor Foundation to end NF.

These coloring pages feature our mascots, Moxie and Sparx, who...

Color Jam Coloring Book for Kids (Spanish)

Description

These Spanish-language coloring pages feature our mascots Moxie and Sparx, who are working with the Children's Tumor Foundation to end NF.

These Spanish-language coloring pages feature our mascots Moxie and Sparx,...

NF Camp

Description

A trifold brochure about NF Camp, the annual summer camp of the Children’s Tumor Foundation, dedicated to teens and young adults living with NF.

A trifold brochure about NF Camp, the annual summer camp...

CTF Patient Brochures

Description

A downloadable, printable one-sheet to share with individuals and groups interested in patient educational materials from the Children's Tumor Foundation

A downloadable, printable one-sheet to share with individuals and groups...

MEK Makes A Difference

Description

Stories of the clinical trial successes that led to the FDA approval of the MEK inhibitor selumetinib (Koselugo).

Stories of the clinical trial successes that led to the...

Support for Adults with NF

Description

A printable resource about Children’s Tumor Foundation initiatives for adults living with NF, including all types of neurofibromatosis and schwannomatosis.

A printable resource about Children’s Tumor Foundation initiatives for adults...

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