All Resources
About the Foundation Fact Sheet
Learn about the Children's Tumor Foundation in this informative one-page fact sheet.
Learn about the Children's Tumor Foundation in this informative one-page...
Learn about the Children's Tumor Foundation in this informative one-page fact sheet.
About the Foundation Fact Sheet (Spanish)
A Spanish language trifold brochure highlighting the many programs of the Children's Tumor Foundation and our mission to end NF.
A Spanish language trifold brochure highlighting the many programs of...
A Spanish language trifold brochure highlighting the many programs of the Children's Tumor Foundation and our mission to end NF.
About the Foundation Trifold Brochure
A trifold brochure highlighting the many programs of the Children's Tumor Foundation and our mission to end NF.
A trifold brochure highlighting the many programs of the Children's...
A trifold brochure highlighting the many programs of the Children's Tumor Foundation and our mission to end NF.
About the Foundation Trifold Brochure (Spanish)
A Spanish language trifold brochure highlighting the many programs of the Children's Tumor Foundation and our mission to end NF.
A Spanish language trifold brochure highlighting the many programs of...
A Spanish language trifold brochure highlighting the many programs of the Children's Tumor Foundation and our mission to end NF.
CTF Annual Report
The latest annual report of the Children’s Tumor Foundation features financial information, a summary of CTF programs, and an acknowledgment of our incredible family of donors.
The latest annual report of the Children’s Tumor Foundation features...
The latest annual report of the Children’s Tumor Foundation features financial information, a summary of CTF programs, and an acknowledgment of our incredible family of donors.
Planned Giving: The NF Legacy Society
Learn more about leaving the Children’s Tumor Foundation in your will or estate planning in this informative brochure.
Learn more about leaving the Children’s Tumor Foundation in your...
Learn more about leaving the Children’s Tumor Foundation in your will or estate planning in this informative brochure.
31 NF Facts in 6 Languages
Expand your knowledge and contribute to raising awareness throughout NF Awareness Month with 31 Facts About NF. These bite-sized facts about NF are available at the links below in English, Spanish, French, German, Italian, and Dutch.
Expand your knowledge and contribute to raising awareness throughout NF...
Expand your knowledge and contribute to raising awareness throughout NF Awareness Month with 31 Facts About NF. These bite-sized facts about NF are available at the links below in English,...
NF Fact Sheet (Spanish)
A Spanish fact sheet about all types of NF, which refers to neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN).
A Spanish fact sheet about all types of NF, which...
A Spanish fact sheet about all types of NF, which refers to neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN).
NF Q&A (Spanish)
A Spanish translation of CTF's trifold brochure that covers frequently asked questions about all types of neurofibromatosis and schwannomatosis, collectively referred to as NF.
A Spanish translation of CTF's trifold brochure that covers frequently...
A Spanish translation of CTF's trifold brochure that covers frequently asked questions about all types of neurofibromatosis and schwannomatosis, collectively referred to as NF.
NF Fact Sheet
A fact sheet about all types of NF, which refers to neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN).
A fact sheet about all types of NF, which refers...
A fact sheet about all types of NF, which refers to neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN).
NF Infographic
This infographic features colorful images, facts, and statistics about all types of neurofibromatosis and schwannomatosis.
This infographic features colorful images, facts, and statistics about all...
This infographic features colorful images, facts, and statistics about all types of neurofibromatosis and schwannomatosis.
NF Q&A
This trifold brochure from the Children's Tumor Foundations covers frequently asked questions about all types of NF.
This trifold brochure from the Children's Tumor Foundations covers frequently...
This trifold brochure from the Children's Tumor Foundations covers frequently asked questions about all types of NF.
Archie Comics Sounds Like Music (Spanish)
A Spanish translation of "Sounds Like Music," from Archie Comics and the Children's Tumor Foundation. Meet Grace, the first member of the Archie Comics universe living with NF2-related schwannomatosis.
A Spanish translation of "Sounds Like Music," from Archie Comics...
A Spanish translation of "Sounds Like Music," from Archie Comics and the Children's Tumor Foundation. Meet Grace, the first member of the Archie Comics universe living with NF2-related schwannomatosis.
Color Jam Coloring Book for Kids
These coloring pages feature our mascots, Moxie and Sparx, who are working with the Children's Tumor Foundation to end NF.
These coloring pages feature our mascots, Moxie and Sparx, who...
These coloring pages feature our mascots, Moxie and Sparx, who are working with the Children's Tumor Foundation to end NF.
Color Jam Coloring Book for Kids (Spanish)
These Spanish-language coloring pages feature our mascots Moxie and Sparx, who are working with the Children's Tumor Foundation to end NF.
These Spanish-language coloring pages feature our mascots Moxie and Sparx,...
These Spanish-language coloring pages feature our mascots Moxie and Sparx, who are working with the Children's Tumor Foundation to end NF.
Moxie & Sparx Flashcards
Help teach others about NF! Download our NF Flashcards featuring our mascots Moxie and Sparx sharing facts about NF. These are perfect for teachers to give a lesson on NF, NF Heroes to share with their classmates, and parents to help answer questions from their kids. Download, print double-sided, cut out, and spread knowledge of NF!
Help teach others about NF! Download our NF Flashcards featuring...
Help teach others about NF! Download our NF Flashcards featuring our mascots Moxie and Sparx sharing facts about NF. These are perfect for teachers to give a lesson on NF,...
Moxie and Sparx Explain NF1 (French)
French translation of CTF's short comic for kids, Moxie & Sparx (Caffie and Nerfy) Explain NF1.
French translation of CTF's short comic for kids, Moxie &...
French translation of CTF's short comic for kids, Moxie & Sparx (Caffie and Nerfy) Explain NF1.
Understanding NF2-SWN Comic
Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy Nguyen, who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s childhood struggle to understand his diagnosis and navigate tumors and progressive hearing loss.
Understanding NF2-SWN is an eight-page educational comic book that tells...
Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy Nguyen, who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks...
Understanding NF2-SWN Comic (Spanish)
Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s childhood struggle to understand his diagnosis and navigate this difficult condition. This version has been translated into Spanish.
Understanding NF2-SWN is an eight-page educational comic book that tells...
Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s...
Archie Comics’ Sounds Like Music
Meet Grace, the first member of the Archie Comics universe living with NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2.
Meet Grace, the first member of the Archie Comics universe...
Meet Grace, the first member of the Archie Comics universe living with NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2.
Café Au Lait – Children’s Picture Book
Available for purchase at the CTF Store, this 36-page picture book tells the story of Enzo and his story about café au lait spots.
Available for purchase at the CTF Store, this 36-page picture...
Available for purchase at the CTF Store, this 36-page picture book tells the story of Enzo and his story about café au lait spots.
Moxie and Sparx Explain NF1
A short comic book for kids explaining NF1 with CTF mascots Moxie and Sparx.
A short comic book for kids explaining NF1 with CTF...
A short comic book for kids explaining NF1 with CTF mascots Moxie and Sparx.
Moxie and Sparx Explain NF1 (Spanish)
The Spanish translation of CTF's short comic book for kids explaining NF1 with CTF mascots Moxie and Sparx.
The Spanish translation of CTF's short comic book for kids...
The Spanish translation of CTF's short comic book for kids explaining NF1 with CTF mascots Moxie and Sparx.
NF Parent Guidebook
A 160-page guidebook for parents of children living with NF1 from the Children's Tumor Foundation. Read more about the parent guidebook HERE.
A 160-page guidebook for parents of children living with NF1...
A 160-page guidebook for parents of children living with NF1 from the Children's Tumor Foundation. Read more about the parent guidebook HERE.
NF Parent Guidebook (French)
A French translation of CTF's 160-page guidebook for parents of children living with NF1. Read more about the Parent Guidebook HERE.
A French translation of CTF's 160-page guidebook for parents of...
A French translation of CTF's 160-page guidebook for parents of children living with NF1. Read more about the Parent Guidebook HERE.
NF Parent Guidebook (Spanish)
A Spanish translation of CTF's 160-page guidebook for parents of children living with NF1. Read more about the Parent Guidebook HERE.
A Spanish translation of CTF's 160-page guidebook for parents of...
A Spanish translation of CTF's 160-page guidebook for parents of children living with NF1. Read more about the Parent Guidebook HERE.
NF Registry
This trifold brochure introduces the NF Registry and the many reasons patients living with any type of neurofibromatosis or schwannomatosis should join.
This trifold brochure introduces the NF Registry and the many...
This trifold brochure introduces the NF Registry and the many reasons patients living with any type of neurofibromatosis or schwannomatosis should join.
NF Registry (French)
This French-language trifold brochure shares information about the NF Registry and how patients living with any type of neurofibromatosis or schwannomatosis can join this important initiative.
This French-language trifold brochure shares information about the NF Registry...
This French-language trifold brochure shares information about the NF Registry and how patients living with any type of neurofibromatosis or schwannomatosis can join this important initiative.
NF Registry (Italian)
This Italian-language trifold brochure shares information about the NF Registry and how patients living with any type of neurofibromatosis or schwannomatosis can join this important initiative.
This Italian-language trifold brochure shares information about the NF Registry...
This Italian-language trifold brochure shares information about the NF Registry and how patients living with any type of neurofibromatosis or schwannomatosis can join this important initiative.
NF Registry (Spanish)
This Spanish-language trifold brochure shares information about the NF Registry and how patients living with any type of neurofibromatosis or schwannomatosis can join this important initiative.
This Spanish-language trifold brochure shares information about the NF Registry...
This Spanish-language trifold brochure shares information about the NF Registry and how patients living with any type of neurofibromatosis or schwannomatosis can join this important initiative.
NF Registry (German)
This German-language trifold brochure shares information about the NF Registry and how patients living with any type of neurofibromatosis or schwannomatosis can join this important initiative.
This German-language trifold brochure shares information about the NF Registry...
This German-language trifold brochure shares information about the NF Registry and how patients living with any type of neurofibromatosis or schwannomatosis can join this important initiative.
NF Registry (Portuguese)
This Portuguese-language trifold brochure shares information about the NF Registry and how patients living with any type of neurofibromatosis or schwannomatosis can join this important initiative.
This Portuguese-language trifold brochure shares information about the NF Registry...
This Portuguese-language trifold brochure shares information about the NF Registry and how patients living with any type of neurofibromatosis or schwannomatosis can join this important initiative.
NF1 Fact Sheet (Spanish)
A Spanish translation of CTF's handy one-page fact sheet that summarizes basic information about neurofibromatosis type 1 (NF1).
A Spanish translation of CTF's handy one-page fact sheet that...
A Spanish translation of CTF's handy one-page fact sheet that summarizes basic information about neurofibromatosis type 1 (NF1).
NF1 Guide for Educators
An informational brochure for educators and teachers who may have students with NF in their classroom or school.
An informational brochure for educators and teachers who may have...
An informational brochure for educators and teachers who may have students with NF in their classroom or school.
NF1 Guide for Educators (Spanish)
This Spanish translation is an NF education for school administrators and teachers who may have students with NF in their classroom or school.
This Spanish translation is an NF education for school administrators...
This Spanish translation is an NF education for school administrators and teachers who may have students with NF in their classroom or school.
NF1 Infographic
This neurofibromatosis type 1 (NF1) infographic features colorful images, facts, and statistics about this genetic condition that affects 1 in every 2,500 births.
This neurofibromatosis type 1 (NF1) infographic features colorful images, facts,...
This neurofibromatosis type 1 (NF1) infographic features colorful images, facts, and statistics about this genetic condition that affects 1 in every 2,500 births.
NF1 Learning Disabilities
A brochure for families about NF1-associated learning disabilities and strategies for success at home and school.
A brochure for families about NF1-associated learning disabilities and strategies...
A brochure for families about NF1-associated learning disabilities and strategies for success at home and school.
NF1 Learning Disabilities (French)
A French translation of a CTF brochure for families about NF1-associated learning disabilities and strategies for success at home and school.
A French translation of a CTF brochure for families about...
A French translation of a CTF brochure for families about NF1-associated learning disabilities and strategies for success at home and school.
NF1 Learning Disabilities (German)
A German translation of a CTF brochure for families about NF1-associated learning disabilities and strategies for success at home and school.
A German translation of a CTF brochure for families about...
A German translation of a CTF brochure for families about NF1-associated learning disabilities and strategies for success at home and school.
NF1 Learning Disabilities (Italian)
An Italian translation of our brochure for families about NF1-associated learning disabilities and strategies for success at home and school.
An Italian translation of our brochure for families about NF1-associated...
An Italian translation of our brochure for families about NF1-associated learning disabilities and strategies for success at home and school.
NF1 Learning Disabilities (Spanish)
A Spanish translation of our brochure for families about NF1-associated learning disabilities and strategies for success at home and school.
A Spanish translation of our brochure for families about NF1-associated...
A Spanish translation of our brochure for families about NF1-associated learning disabilities and strategies for success at home and school.
NF1 Microdeletions
This resource is for families who have a deletion of the NF1 gene causing neurofibromatosis type 1 (NF1). This is also referred to as NF1 microdeletion.
This resource is for families who have a deletion of...
This resource is for families who have a deletion of the NF1 gene causing neurofibromatosis type 1 (NF1). This is also referred to as NF1 microdeletion.
NF1 Microdeletions (Spanish)
A Spanish translation of CTF's resource is for families who have a deletion of the NF1 gene causing neurofibromatosis type 1 (NF1). This is also referred to as NF1 microdeletion.
A Spanish translation of CTF's resource is for families who...
A Spanish translation of CTF's resource is for families who have a deletion of the NF1 gene causing neurofibromatosis type 1 (NF1). This is also referred to as NF1 microdeletion.
NF1 Optic Pathway Gliomas
This resource is for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have an optic pathway glioma (OPG).
This resource is for individuals with neurofibromatosis type 1 (NF1)...
This resource is for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have an optic pathway glioma (OPG).
NF1 Optic Pathway Gliomas (Spanish)
A Spanish language resource for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have an optic pathway glioma (OPG).
A Spanish language resource for individuals with neurofibromatosis type 1...
A Spanish language resource for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have an optic pathway glioma (OPG).
NF1 Plexiform Neurofibromas
This resource is for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have a plexiform neurofibroma.
This resource is for individuals with neurofibromatosis type 1 (NF1)...
This resource is for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have a plexiform neurofibroma.
NF1 Plexiform Neurofibromas (Spanish)
A resource in Spanish for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have a plexiform neurofibroma.
A resource in Spanish for individuals with neurofibromatosis type 1...
A resource in Spanish for individuals with neurofibromatosis type 1 (NF1) who are suspected or confirmed to have a plexiform neurofibroma.
2021 NF1 Diagnostic Criteria Update
A summary of the 2021 diagnostic criteria update for neurofibromatosis type 1 (NF1).
A summary of the 2021 diagnostic criteria update for neurofibromatosis...
A summary of the 2021 diagnostic criteria update for neurofibromatosis type 1 (NF1).
2021 NF1 Diagnostic Criteria Update (Spanish)
A Spanish summary of the 2021 diagnostic criteria update for neurofibromatosis type 1.
A Spanish summary of the 2021 diagnostic criteria update for...
A Spanish summary of the 2021 diagnostic criteria update for neurofibromatosis type 1.
Café Au Lait – Children’s Picture Book
Available for purchase at the CTF Store, this 36-page picture book tells the story of Enzo and his story about café au lait spots.
Available for purchase at the CTF Store, this 36-page picture...
Available for purchase at the CTF Store, this 36-page picture book tells the story of Enzo and his story about café au lait spots.
Diagnosed with NF1
An informative booklet for patients diagnosed with neurofibromatosis type 1 (NF1).
An informative booklet for patients diagnosed with neurofibromatosis type 1...
An informative booklet for patients diagnosed with neurofibromatosis type 1 (NF1).
Diagnosed with NF1 (Spanish)
The Spanish version of CTF's informative booklet for patients diagnosed with neurofibromatosis type 1 (NF1).
The Spanish version of CTF's informative booklet for patients diagnosed...
The Spanish version of CTF's informative booklet for patients diagnosed with neurofibromatosis type 1 (NF1).
MEK Inhibitors Patient Information Sheet
Information for NF patients about MEK inhibitor drugs.
Information for NF patients about MEK inhibitor drugs.
Information for NF patients about MEK inhibitor drugs.
MEK Inhibitors Patient Information Sheet (Spanish)
A Spanish translation of our information for NF patients about MEK inhibitor drugs.
A Spanish translation of our information for NF patients about...
A Spanish translation of our information for NF patients about MEK inhibitor drugs.
Moxie and Sparx Explain NF1
A short comic book for kids explaining NF1 with CTF mascots Moxie and Sparx.
A short comic book for kids explaining NF1 with CTF...
A short comic book for kids explaining NF1 with CTF mascots Moxie and Sparx.
Moxie and Sparx Explain NF1 (Spanish)
The Spanish translation of CTF's short comic book for kids explaining NF1 with CTF mascots Moxie and Sparx.
The Spanish translation of CTF's short comic book for kids...
The Spanish translation of CTF's short comic book for kids explaining NF1 with CTF mascots Moxie and Sparx.
NF Parent Guidebook
A 160-page guidebook for parents of children living with NF1 from the Children's Tumor Foundation. Read more about the parent guidebook HERE.
A 160-page guidebook for parents of children living with NF1...
A 160-page guidebook for parents of children living with NF1 from the Children's Tumor Foundation. Read more about the parent guidebook HERE.
NF Parent Guidebook (French)
A French translation of CTF's 160-page guidebook for parents of children living with NF1. Read more about the Parent Guidebook HERE.
A French translation of CTF's 160-page guidebook for parents of...
A French translation of CTF's 160-page guidebook for parents of children living with NF1. Read more about the Parent Guidebook HERE.
NF Parent Guidebook (Spanish)
A Spanish translation of CTF's 160-page guidebook for parents of children living with NF1. Read more about the Parent Guidebook HERE.
A Spanish translation of CTF's 160-page guidebook for parents of...
A Spanish translation of CTF's 160-page guidebook for parents of children living with NF1. Read more about the Parent Guidebook HERE.
NF1 Fact Sheet
This handy one-page fact sheet summarizes basic information about neurofibromatosis type 1 (NF1).
This handy one-page fact sheet summarizes basic information about neurofibromatosis...
This handy one-page fact sheet summarizes basic information about neurofibromatosis type 1 (NF1).
NF1 Guide for Adults
A brochure for adults with NF1 covering important health and wellness considerations.
A brochure for adults with NF1 covering important health and...
A brochure for adults with NF1 covering important health and wellness considerations.
NF1 Guide for Adults (Spanish)
A Spanish-language brochure for adults with NF1 covering important health and wellness guidelines.
A Spanish-language brochure for adults with NF1 covering important health...
A Spanish-language brochure for adults with NF1 covering important health and wellness guidelines.
Possible NF1: What are Café Au Lait Spots
An informational handout about café au lait spots and a possible diagnosis of neurofibromatosis type 1 (NF1).
An informational handout about café au lait spots and a...
An informational handout about café au lait spots and a possible diagnosis of neurofibromatosis type 1 (NF1).
Possible NF1: What are Café Au Lait Spots (Spanish)
A Spanish resource with information about café au lait spots and a resulting possible diagnosis of neurofibromatosis type 1 (NF1).
A Spanish resource with information about café au lait spots...
A Spanish resource with information about café au lait spots and a resulting possible diagnosis of neurofibromatosis type 1 (NF1).
NF2-SWN Accelerator Impact Report
A comprehensive report of the first year of CTF's NF2-SWN Accelerator Initiative, which is focused on improving drug selection through the development of innovative testing models and the development of gene therapy options that address the underlying genetic causes of NF2-related schwannomatosis.
A comprehensive report of the first year of CTF's NF2-SWN...
A comprehensive report of the first year of CTF's NF2-SWN Accelerator Initiative, which is focused on improving drug selection through the development of innovative testing models and the development of...
NF2-SWN Infographic
This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and statistics about these rare genetic conditions.
This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and...
This NF2-related schwannomatosis (NF2-SWN) infographic features colorful images, facts, and statistics about these rare genetic conditions.
2022 Diagnostic Criteria Update Summary (Spanish)
A Spanish-language summary of the 2022 diagnostic criteria update for all types of schwannomatosis, including the condition previously known as neurofibromatosis type 2.
A Spanish-language summary of the 2022 diagnostic criteria update for...
A Spanish-language summary of the 2022 diagnostic criteria update for all types of schwannomatosis, including the condition previously known as neurofibromatosis type 2.
Archie Comics Sounds Like Music (Spanish)
A Spanish translation of "Sounds Like Music," from Archie Comics and the Children's Tumor Foundation. Meet Grace, the first member of the Archie Comics universe living with NF2-related schwannomatosis.
A Spanish translation of "Sounds Like Music," from Archie Comics...
A Spanish translation of "Sounds Like Music," from Archie Comics and the Children's Tumor Foundation. Meet Grace, the first member of the Archie Comics universe living with NF2-related schwannomatosis.
Diagnosed with NF2-SWN
A booklet created for anyone diagnosed with NF2-related schwannomatosis, or NF2-SWN (formerly called neurofibromatosis type 2).
A booklet created for anyone diagnosed with NF2-related schwannomatosis, or...
A booklet created for anyone diagnosed with NF2-related schwannomatosis, or NF2-SWN (formerly called neurofibromatosis type 2).
Diagnosed with NF2-SWN (Spanish)
A Spanish translation of our booklet created for anyone diagnosed with NF2-related schwannomatosis, or NF2-SWN (formerly called neurofibromatosis type 2).
A Spanish translation of our booklet created for anyone diagnosed...
A Spanish translation of our booklet created for anyone diagnosed with NF2-related schwannomatosis, or NF2-SWN (formerly called neurofibromatosis type 2).
NF2-SWN Fact Sheet
A summary of important facts about NF2-related schwannomatosis (NF2-SWN).
A summary of important facts about NF2-related schwannomatosis (NF2-SWN).
A summary of important facts about NF2-related schwannomatosis (NF2-SWN).
NF2-SWN Fact Sheet (Spanish)
A Spanish translation of CTF's important facts about NF2-related schwannomatosis (NF2-SWN).
A Spanish translation of CTF's important facts about NF2-related schwannomatosis...
A Spanish translation of CTF's important facts about NF2-related schwannomatosis (NF2-SWN).
Understanding NF2-SWN Comic
Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy Nguyen, who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s childhood struggle to understand his diagnosis and navigate tumors and progressive hearing loss.
Understanding NF2-SWN is an eight-page educational comic book that tells...
Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy Nguyen, who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks...
Understanding NF2-SWN Comic (Spanish)
Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s childhood struggle to understand his diagnosis and navigate this difficult condition. This version has been translated into Spanish.
Understanding NF2-SWN is an eight-page educational comic book that tells...
Understanding NF2-SWN is an eight-page educational comic book that tells the true story of Billy who was diagnosed with NF2-related schwannomatosis at the age of six. The story tracks Billy’s...
Webinars on NF2-SWN Hearing Loss
The Children’s Tumor Foundation has sponsored a number of helpful webinars and panels to help patients living with NF2-SWN understand the latest in communication technology and cope with hearing loss.
The Children’s Tumor Foundation has sponsored a number of helpful...
The Children’s Tumor Foundation has sponsored a number of helpful webinars and panels to help patients living with NF2-SWN understand the latest in communication technology and cope with hearing loss.
2022 Diagnostic Criteria Update Summary
A summary of the diagnostic criteria for all types of schwannomatosis, including NF2-related schwannomatosis. Prior to this 2022 update, these conditions were referred to as schwannomatosis and neurofibromatosis type 2.
A summary of the diagnostic criteria for all types of...
A summary of the diagnostic criteria for all types of schwannomatosis, including NF2-related schwannomatosis. Prior to this 2022 update, these conditions were referred to as schwannomatosis and neurofibromatosis type 2.
Archie Comics’ Sounds Like Music
Meet Grace, the first member of the Archie Comics universe living with NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2.
Meet Grace, the first member of the Archie Comics universe...
Meet Grace, the first member of the Archie Comics universe living with NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2.
NF2-SWN Accelerator Impact Report
A comprehensive report of the first year of CTF's NF2-SWN Accelerator Initiative, which is focused on improving drug selection through the development of innovative testing models and the development of gene therapy options that address the underlying genetic causes of NF2-related schwannomatosis.
A comprehensive report of the first year of CTF's NF2-SWN...
A comprehensive report of the first year of CTF's NF2-SWN Accelerator Initiative, which is focused on improving drug selection through the development of innovative testing models and the development of...
Patient Engagement
A trifold brochure about CTF's Patient Engagement program, which trains patients to take an active part in neurofibromatosis and schwannomatosis research.
A trifold brochure about CTF's Patient Engagement program, which trains...
A trifold brochure about CTF's Patient Engagement program, which trains patients to take an active part in neurofibromatosis and schwannomatosis research.
What is a Clinical Trial
A printable resource for those in the NF community seeking information about clinical trials and the factors to be considered before participating in a clinical trial.
A printable resource for those in the NF community seeking...
A printable resource for those in the NF community seeking information about clinical trials and the factors to be considered before participating in a clinical trial.
What is a Clinical Trial (Spanish)
A Spanish translation of our printable resource for those in the NF community seeking information about clinical trials and the factors to be considered before participating in a clinical trial.
A Spanish translation of our printable resource for those in...
A Spanish translation of our printable resource for those in the NF community seeking information about clinical trials and the factors to be considered before participating in a clinical trial.
MEK Makes A Difference
Stories of the clinical trial successes that led to the FDA approval of the MEK inhibitor selumetinib (Koselugo).
Stories of the clinical trial successes that led to the...
Stories of the clinical trial successes that led to the FDA approval of the MEK inhibitor selumetinib (Koselugo).
Top Ten NF Advancements in 2023
A summary of the Children's Tumor Foundation's Top Ten Advancements in NF Research in 2023.
A summary of the Children's Tumor Foundation's Top Ten Advancements...
A summary of the Children's Tumor Foundation's Top Ten Advancements in NF Research in 2023.
2022 Diagnostic Criteria Update Summary (Spanish)
A Spanish-language summary of the 2022 diagnostic criteria update for all types of schwannomatosis, including the condition previously known as neurofibromatosis type 2.
A Spanish-language summary of the 2022 diagnostic criteria update for...
A Spanish-language summary of the 2022 diagnostic criteria update for all types of schwannomatosis, including the condition previously known as neurofibromatosis type 2.
Schwannomatosis Fact Sheet (Spanish)
A Spanish translation of CTF's one-page fact sheet about the conditions that fall under the umbrella term schwannomatosis, or SWN.
A Spanish translation of CTF's one-page fact sheet about the...
A Spanish translation of CTF's one-page fact sheet about the conditions that fall under the umbrella term schwannomatosis, or SWN.
2022 Diagnostic Criteria Update Summary
A summary of the diagnostic criteria for all types of schwannomatosis, including NF2-related schwannomatosis. Prior to this 2022 update, these conditions were referred to as schwannomatosis and neurofibromatosis type 2.
A summary of the diagnostic criteria for all types of...
A summary of the diagnostic criteria for all types of schwannomatosis, including NF2-related schwannomatosis. Prior to this 2022 update, these conditions were referred to as schwannomatosis and neurofibromatosis type 2.
Schwannomatosis Fact Sheet
A one-page fact sheet about the conditions that fall under the umbrella term schwannomatosis, or SWN.
A one-page fact sheet about the conditions that fall under...
A one-page fact sheet about the conditions that fall under the umbrella term schwannomatosis, or SWN.
Schwannomatosis Infographic
This schwannomatosis (SWN) infographic features colorful images, facts, and statistics about these rare genetic conditions.
This schwannomatosis (SWN) infographic features colorful images, facts, and statistics...
This schwannomatosis (SWN) infographic features colorful images, facts, and statistics about these rare genetic conditions.
Color Jam Coloring Book for Kids
These coloring pages feature our mascots, Moxie and Sparx, who are working with the Children's Tumor Foundation to end NF.
These coloring pages feature our mascots, Moxie and Sparx, who...
These coloring pages feature our mascots, Moxie and Sparx, who are working with the Children's Tumor Foundation to end NF.
Color Jam Coloring Book for Kids (Spanish)
These Spanish-language coloring pages feature our mascots Moxie and Sparx, who are working with the Children's Tumor Foundation to end NF.
These Spanish-language coloring pages feature our mascots Moxie and Sparx,...
These Spanish-language coloring pages feature our mascots Moxie and Sparx, who are working with the Children's Tumor Foundation to end NF.
NF Camp
A trifold brochure about NF Camp, the annual summer camp of the Children’s Tumor Foundation, dedicated to teens and young adults living with NF.
A trifold brochure about NF Camp, the annual summer camp...
A trifold brochure about NF Camp, the annual summer camp of the Children’s Tumor Foundation, dedicated to teens and young adults living with NF.
CTF Patient Brochures
A downloadable, printable one-sheet to share with individuals and groups interested in patient educational materials from the Children's Tumor Foundation
A downloadable, printable one-sheet to share with individuals and groups...
A downloadable, printable one-sheet to share with individuals and groups interested in patient educational materials from the Children's Tumor Foundation
MEK Makes A Difference
Stories of the clinical trial successes that led to the FDA approval of the MEK inhibitor selumetinib (Koselugo).
Stories of the clinical trial successes that led to the...
Stories of the clinical trial successes that led to the FDA approval of the MEK inhibitor selumetinib (Koselugo).
Support for Adults with NF
A printable resource about Children’s Tumor Foundation initiatives for adults living with NF, including all types of neurofibromatosis and schwannomatosis.
A printable resource about Children’s Tumor Foundation initiatives for adults...
A printable resource about Children’s Tumor Foundation initiatives for adults living with NF, including all types of neurofibromatosis and schwannomatosis.
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