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The latest news, stories, and updates from the Children's Tumor Foundation.



A person wearing large glasses and a blue baseball cap with an "LA" logo is sitting in a car, smiling slightly. Sunlight illuminates their face.
NF1Story of NF

Stories of NF: Andrea M

When I was born, the doctors kept telling my mom that I had a clogged…
Dr Vincent Riccardi
FeaturedFeatured EUScience & Research

Honoring the Legacy of Vic Riccardi: A Pioneer in NF Research

We are deeply saddened by the passing of Dr. Vincent "Vic" Riccardi, the world-renowned expert…
Text on a plain background reads: "MAKE NF RESEARCH VISIBLE" and "WHY JOIN THE NF FIELD?" in blue and green letters.
Science & ResearchVideo

Young Researchers and Clinicians: Join the NF Field

The field of neurofibromatosis and schwannomatosis research and clinical care offers a rich tapestry of…
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NF2-SWNStory of NF

Stories of NF: Rozalinda H

I was diagnosed with NF2-SWN nine months ago (21 years old) last summer, on July…
Collaborations & PartnershipsNF1Outside Opportunities

Funding Opportunity: 2025 Francis S. Collins Scholars

The Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research is designed to…
Opening Address slide featuring Nathalie Moll, Director General, EFPIA - European Federation of Pharmaceutical Industries and Associations, with a globe and abstract light design background.
Featured EUGlobalPharma

Nathalie Moll, Director General of EFPIA, Delivered the Opening Address at the Global NF Conference

"The community that looks after rare diseases, whether it’s scientists, patient communities, or industries, are…
Two individuals on stage smile while holding an award. They stand beside a podium with the text "Global NF Conference." One person holds a plaque with the words "2014 Friedrich von Recklinghausen Award.
Awards & GrantsScience & Research

Children’s Tumor Foundation Names Rosalie Ferner, MD, 2024 Friedrich von Recklinghausen Award Winner

The Friedrich von Recklinghausen Award: Neurofibromatosis Tradition and Progress The Children’s Tumor Foundation’s (CTF) Friedrich…
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CTF in the NewsFeaturedFeatured EU

CEO Annette Bakker Opinion Piece Published in Chicago Tribune

The Chicago Tribune published Children's Tumor Foundation CEO Annette Bakker's most recent editorial on patient…
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NF1Story of NF

Stories of NF: Shy

I was diagnosed (with NF1) at seven years old while undergoing an allergy test. I…