Skip to main content

News

The latest news, stories, and updates from the Children's Tumor Foundation.

 

Filter

A person with a braid and sunglasses on their head smiles in front of pink hydrangea flowers and greenery.
Featured

Legacy Gift: Melissa D. Skyer

The Children’s Tumor Foundation is deeply honored and grateful to receive a legacy gift from…
Two people in superhero costumes and a child pose with flexed arms in front of a building.
NF1Story of NF

Story of NF: Remy H.

Remy was little when she was first diagnosed (with NF1). I kept saying something was…
Awards & GrantsFeaturedFeatured EUNF1NF2-SWNPress ReleaseScience & ResearchSWN

8 Bold Minds, $888K to Fuel the Future of NF Research

Children’s Tumor Foundation invests in Young Investigators with research projects focused on hearing loss, NF2-SWN…
A woman with a name caption "Catherine R." and text "Story of NF" is featured in a Breast Cancer Awareness Month graphic with a pink ribbon symbol.
NF1Story of NF

Story of NF: Catherine R.

October is Breast Cancer Awareness Month. Women with NF1 have up to a five-fold higher…
Illustration of a woman with an NF1 ribbon on her shirt. Text reads, "Women with NF1 have a 5-times higher chance of developing breast cancer before turning 50." Breast Cancer Awareness Month.
AwarenessFeaturedNF1

Understanding Your Breast Cancer Risk with Neurofibromatosis Type 1 (NF1) and What You Can Do About It

If you or someone you love has neurofibromatosis type 1 (NF1), it’s essential to know…
A woman wearing a black coat and sunglasses on her head holds a young girl with face paint and a green shirt, standing in front of a wooden fence by the beach.
NF1Story of NF

Story of NF: Norah

There were many early signs that we weren’t educated enough to know how to put…
Poster for "A Different Man" featuring two men sitting side by side, one with facial disfigurement, against a dark background. Text at the bottom includes the cast and film credits.
AwarenessFeaturedNF1Press Release

Bringing NF Into Focus: A Close-Up on the Film ‘A Different Man’

With the release of the film, A Different Man, directed by Aaron Schimberg and produced…
A smiling woman with short gray hair and orange-framed glasses on her head, wearing a pink patterned scarf and a black jacket. The background shows an outdoor, wooded area.
AwarenessFeaturedFeatured EUScience & Research

Reflections About Ludwine Messiaen: A Pioneer Who Advanced NF and Other Women in NF

Personal Reflections from Four of Her Female Mentees Discover more articles in the Women in…
Two illustrated book covers are displayed. The left cover is titled "Talking to Your Child About NF1: A Guidebook for Parents," and the right cover is titled "Super Emerson: A Book About NF1 for Kids.
AwarenessFeaturedFeatured EUNF1Tools for Kids

New CTF Resources: Talking to Your Child About NF1 and Super Emerson

The Children’s Tumor Foundation is excited to introduce two new resources for families affected by…
FeaturedFeatured EUNF Endurance

The Children’s Tumor Foundation is an Official Partner of the TCS London Marathon

The Children’s Tumor Foundation (CTF) is excited to announce our official charity partnership with the…
A group of seven diverse people, including medical professionals, a young person in a "Born a Fighter" shirt, and others, pose together for the 2023 Children's Tumor Foundation Annual Report cover.
AwarenessFeaturedFeatured EU

Children’s Tumor Foundation 2023 Annual Report

The Children’s Tumor Foundation 2023 Annual Report highlights the year’s progress in NF research, awareness,…
A close-up of a person using a tablet with text "Daily News" on the left and "pharmaphorum" on the right over a blue and white background.
CTF in the NewsFeaturedFeatured EUScience & Research

PharmaPhorum Interview: How Drug Repositioning is Accelerating Treatments for NF Patients

In a recent interview with PharmaPhorum, a leading media platform dedicated to pharmaceutical and biotech…