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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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NF2-SWNStory of NF

Story of NF: Anisha R.

I was diagnosed at the age of 26 in 2022. I experienced extraordinary NF2-SWN effects…
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AdvocacyFeatured

Our Fight Continues

Update: March 19, 2025 Dear NF Families and Friends, Last night, we received devastating news:…
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Awareness

2025 Shine a Light Locations

Shine a Light on NF brings NF awareness into the community by lighting up buildings,…
A person stands with arms crossed next to text announcing their joining CureAge Therapeutics from the Children's Tumor Foundation. Logos of both organizations are displayed.
Collaborations & PartnershipsGlobalPress Release

Children’s Tumor Foundation’s Montse Montaner Joins CureAge Therapeutics

Seasoned international advisor will serve on the board of CureAge Therapeutics The Children's Tumor Foundation…
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CTF in the NewsPharma

Children’s Tumor Foundation Featured in Two-Part Series in BioSpace on Reviving Abandoned Drugs for Rare Disease Treatments

The Children's Tumor Foundation (CTF) is spotlighted in two parts in the life science publication…
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AdvocacyAwarenessFeaturedFeatured EUPharma

From NF to the World: Rare Disease Day and the Race for Faster Treatments

This has been a February to remember! In just a few weeks, a new drug…
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NF1Story of NF

Story of NF: Jonah S.

I was diagnosed at birth. Unidentified Bright Spots were found during an MRI when I…
Collaborations & PartnershipsFeaturedFeatured EUNF1PharmaPress ReleaseScience & Research

Healx Announces First Patient Dosed in Phase 2 Trial Evaluating HLX-1502 for the Treatment of NF1

Healx has dosed the first patient in its Phase 2 trial for HLX-1502 - the…
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Featured EU

CTF Europe Brochure in Multiple Languages

We are pleased to share our new trifold brochure about CTF Europe, now available in…
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FeaturedNF Clinic Network (NFCN)NF1NF2-SWNPress ReleaseSWN

UF Health Jacksonville joins the NF Clinic Network

Enhancing Clinical Care for Neurofibromatosis and Schwannomatosis Patients   UF Health Jacksonville joins the NF…
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Collaborations & PartnershipsFeaturedFeatured EUNF1PharmaPress ReleaseScience & Research

CureAge Therapeutics Launches to Advance Genetic Therapies for Neurofibromatosis

Children’s Tumor Foundation and Deep Science Ventures Spearhead New Biotech to Develop Curative Treatments for…
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Science & Research

NF Science Explained: Research Links Immune Cells to Tumor Growth in Vestibular Schwannomas

In this article, the Children’s Tumor Foundation offers a patient-friendly summary of a scientific publication…