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Press ReleaseSpecial EventsWays to Give

‘Dancing with Our Stars’ Gala Returns to the Wally Allen Ballroom to Raise Money for Rare Genetic Disorder 

Local stars partner with local dance instructors for the 17th annual ‘Dancing with Our Stars’…
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NF1Story of NF

Stories of NF: Andrea M

When I was born, the doctors kept telling my mom that I had a clogged…
Dr Vincent Riccardi
FeaturedFeatured EUScience & Research

Honoring the Legacy of Vic Riccardi: A Pioneer in NF Research

We are deeply saddened by the passing of Dr. Vincent "Vic" Riccardi, the world-renowned expert…
Two people seated on stage in discussion during the "Fireside Chat with Innovative Health Initiative" at a Children's Tumor Foundation Europe event. A screen behind them displays the event title.
FeaturedGlobalNF ConferencePress ReleaseScience & ResearchTop Story EU

Children’s Tumor Foundation Europe Leads Collective Effort in Accelerating Therapeutics and Innovation for Rare Diseases

Gathering in Brussels for a week, a diverse group of leading experts from across the…
Text on a plain background reads: "MAKE NF RESEARCH VISIBLE" and "WHY JOIN THE NF FIELD?" in blue and green letters.
Science & ResearchVideo

Young Researchers and Clinicians: Join the NF Field

The field of neurofibromatosis and schwannomatosis research and clinical care offers a rich tapestry of…
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NF2-SWNStory of NF

Stories of NF: Rozalinda H

I was diagnosed with NF2-SWN nine months ago (21 years old) last summer, on July…
Collaborations & PartnershipsNF1Outside Opportunities

Funding Opportunity: 2025 Francis S. Collins Scholars

The Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research is designed to…
Opening Address slide featuring Nathalie Moll, Director General, EFPIA - European Federation of Pharmaceutical Industries and Associations, with a globe and abstract light design background.
Featured EUGlobalPharma

Nathalie Moll, Director General of EFPIA, Delivered the Opening Address at the Global NF Conference

"The community that looks after rare diseases, whether it’s scientists, patient communities, or industries, are…
Two individuals on stage smile while holding an award. They stand beside a podium with the text "Global NF Conference." One person holds a plaque with the words "2014 Friedrich von Recklinghausen Award.
Awards & GrantsScience & Research

Children’s Tumor Foundation Names Rosalie Ferner, MD, 2024 Friedrich von Recklinghausen Award Winner

The Friedrich von Recklinghausen Award: Neurofibromatosis Tradition and Progress The Children’s Tumor Foundation’s (CTF) Friedrich…
Graphical abstract from The New England Journal of Medicine showing the effects of Brigatinib in NF2-related Schwannomatosis, indicating a decrease in tumor volume for various target tumors.
Collaborations & PartnershipsNF2-SWNPress ReleasePublicationsScience & ResearchTop StoryTop Story EU

Brigatinib Shows Promise for NF2-SWN: A Direct Result of CTF’s Synodos Initiative

A landmark study published in the New England Journal of Medicine has revealed promising results…
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CTF in the NewsFeaturedFeatured EU

CEO Annette Bakker Opinion Piece Published in Chicago Tribune

The Chicago Tribune published Children's Tumor Foundation CEO Annette Bakker's most recent editorial on patient…
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NF1Story of NF

Stories of NF: Shy

I was diagnosed (with NF1) at seven years old while undergoing an allergy test. I…