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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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FeaturedFeatured EU

Fun, Free, and Inclusive: Summer Activities for Kids with NF

Summer is often filled with energy and excitement—kids running through sprinklers, messy crafts at the…
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Video

A Decade of Dedication: Stephanie Bouley’s Journey to Advance NF1 Research

Stephanie Bouley has spent the past 11 years searching for new treatment options for neurofibromatosis…
Young boy lies on pavement next to chalk drawings of balloons and clouds, with text reading "NF CAN'T HOLD ME DOWN." He wears sunglasses and a shirt that says "Born a fighter.
AwarenessFeaturedFeatured EU

Announcing the Winners of the 2025 “I Know a Fighter” Photo Contest!

We’re thrilled to reveal the winners of this year’s I Know a Fighter Photo Contest!…
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NF1Story of NF

Story of NF: Ivan R.

This story was submitted by Ivan's mother, Francis. Ivan was only about 3-4 months old…
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Awards & GrantsFeaturedFeatured EU

The Friedrich von Recklinghausen Award: Neurofibromatosis Tradition and Progress

The Children’s Tumor Foundation’s Friedrich von Recklinghausen Award is given to individuals in the professional…
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FeaturedFeatured EUPress Release

The Future of Rare Disease Starts Here: NF Leaders Gather in Washington, D.C.

More than 1,000 researchers, patients, and advocates to chart the next frontier in treatment and…
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CTF in the NewsScience & Research

Listen In: How CTF Is Shaping the Future of NF Drug Development

The Children’s Tumor Foundation’s bold and collaborative approach to advancing research and accelerating treatments for…
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Science & Research

CTF CEO Annette Bakker to Speak on Drug Development Panel at BIO 2025

On June 18, Children’s Tumor Foundation CEO Dr. Annette Bakker will speak at the BIO…
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FeaturedFeatured EUScience & Research

Help Fill the Gap to Fuel NF Research and Care

In the world of NF research and care, dedicated scientists and clinicians have long relied…
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Story of NF

Story of NF: Jenelle B.

When I was one year old, I had a pediatrician appointment. The doctor noticed that…
FeaturedFeatured EUNF EnduranceNF1Ways to Give

NFE Athlete Spotlight: Matthew Haas

Living with neurofibromatosis type 1 (NF1), Matthew Haas has found strength in every step, setting…
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AdvocacyTop StoryTop Story EU

Your Voice Was Heard: $25 Million for NF Research Proposed in New House Bill

The House of Representatives Committee on Appropriations has released its draft report for the Fiscal…