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The latest news, stories, and updates from the Children's Tumor Foundation.



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NF1Story of NF

Stories of NF: Blanchesca G

My mom has told me how I got NF and it was when I was…
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Collaborations & PartnershipsScience & Research

Schwannomatosis Open Research Collaborative Computational Partnership Initiative

Need help analyzing schwannomatosis omics or other big data? Apply for the Schwannomatosis Open Research…
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AwarenessNF1Story of NF

Chiasm: A Published Essay by Heather Osterman-Davis

Heather Osterman-Davis is a published writer and an NF Mom. Her work has appeared in…
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NF1PharmaScience & ResearchUncategorized

Important News Regarding Koselugo and Fasting Requirements

We're pleased to share a significant update regarding Koselugo (selumetinib), a drug used to manage…
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FeaturedFeatured EUGlobalScience & Research

Young Investigator: Q&A with Clara Nogué about schwannomatosis cell lines

The Young Investigator Award (YIA) provides two-year salary support to early-career NF researchers to help…
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NF1Story of NF

Stories of NF: Charlie H

Charlie was diagnosed at nine months old through genetic testing. At five weeks old he…

$25 Million for NF Research in Congressional Spending Bill

Great news out of Washington, D.C.! Late last night, lawmakers released H.R. 2882, the Further…
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PublicationsScience & Research

Important Publication: Impact of trametinib on the neuropsychological profile of NF1

Traditional clinical research for tumor treatments relied on objective and tumor-specific measures, for example decreased…
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NF ConferenceScience & ResearchUncategorized

NF Conference Update: EFPIA Director General Nathalie Moll to Deliver Opening Address

The Children's Tumor Foundation (CTF) is excited to announce that Nathalie Moll, Director General of…
Aerial view of residential area with text overlay "play it by ear.

CTF NF2-SWN Documentary: Play It By Ear

The Children's Tumor Foundation is proud to present Play It By Ear, a short documentary…
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NF1Story of NF

Stories of NF: Samantha G

I was diagnosed with NF1 at the age of one. The only symptoms I had…