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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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Science & Research

Listen In: How CTF Is Shaping the Future of NF Drug Development

The Children’s Tumor Foundation’s bold and collaborative approach to advancing research and accelerating treatments for…
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Science & Research

CTF CEO Annette Bakker to Speak on Drug Development Panel at BIO 2025

On June 18, Children’s Tumor Foundation CEO Dr. Annette Bakker will speak at the BIO…
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FeaturedFeatured EUScience & Research

Help Fill the Gap to Fuel NF Research and Care

In the world of NF research and care, dedicated scientists and clinicians have long relied…
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Story of NF

Story of NF: Jenelle B.

When I was one year old, I had a pediatrician appointment. The doctor noticed that…
FeaturedFeatured EUNF EnduranceNF1Ways to Give

NFE Athlete Spotlight: Matthew Haas

Living with neurofibromatosis type 1 (NF1), Matthew Haas has found strength in every step, setting…
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AdvocacyTop StoryTop Story EU

Your Voice Was Heard: $25 Million for NF Research Proposed in New House Bill

The House of Representatives Committee on Appropriations has released its draft report for the Fiscal…
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CTF in the NewsScience & Research

Repurposed Drugs Offer Hope and Momentum for Rare Disease Treatments

While at the 2025 World Orphan Drug Congress (WODC) in Boston, CTF CEO Annette Bakker,…
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NF1Story of NF

Story of NF: Everly F.

At two months old, Everly did not hit her gross motor milestones, and I started…
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NF2-SWNStory of NF

“It’s not a sprint, it’s a marathon” – Brittany’s NF2-SWN Journey

Meet Brittany Iskula: a wife, mom of three, school nurse, runner—and fierce advocate for NF…
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Awards & GrantsFeaturedFeatured EUScience & Research

Attention NF Researchers: New Federal Funding Opportunities Available

NF (neurofibromatosis or schwannomatosis) is now eligible for two Department of Defense (DoD) research funding…
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AwarenessFeaturedFeatured EUNF SummitSWN

A Rare Connection at the NF Summit

From left: Dave, Dale, Jason That’s how Dale described the moment he stood alongside David…
May is nf awareness month.
AwarenessPress Release

Children’s Tumor Foundation Leads Global Call to Action on World NF Awareness Day

Four million people around the world live with NF, a group of genetic conditions that…