News
The latest news, stories, and updates from the Children's Tumor Foundation.
Filter
AllAdvocacyAwards & GrantsAwarenessCollaborations & PartnershipsCovid-19CTF in the NewsCupid's Undie Run (CUR)FeaturedFeatured EUFundraiserGlobalNewsletterNF Clinic Network (NFCN)NF ConferenceNF EnduranceNF RegistryNF SummitNF1NF2-SWNOutside OpportunitiesPatient EngagementPharmaPress ReleasePublicationsScience & ResearchShine A Light Walk (SALW)Special EventsStory of NFSWNThis Is NFTools for KidsTop StoryTop Story EUUncategorizedVideoWays to Give
Science & Research
Listen In: How CTF Is Shaping the Future of NF Drug Development
The Children’s Tumor Foundation’s bold and collaborative approach to advancing research and accelerating treatments for…
Science & Research
CTF CEO Annette Bakker to Speak on Drug Development Panel at BIO 2025
On June 18, Children’s Tumor Foundation CEO Dr. Annette Bakker will speak at the BIO…
FeaturedFeatured EUScience & Research
Help Fill the Gap to Fuel NF Research and Care
In the world of NF research and care, dedicated scientists and clinicians have long relied…
Story of NF
Story of NF: Jenelle B.
When I was one year old, I had a pediatrician appointment. The doctor noticed that…
FeaturedFeatured EUNF EnduranceNF1Ways to Give
NFE Athlete Spotlight: Matthew Haas
Living with neurofibromatosis type 1 (NF1), Matthew Haas has found strength in every step, setting…
AdvocacyTop StoryTop Story EU
Your Voice Was Heard: $25 Million for NF Research Proposed in New House Bill
The House of Representatives Committee on Appropriations has released its draft report for the Fiscal…
CTF in the NewsScience & Research
Repurposed Drugs Offer Hope and Momentum for Rare Disease Treatments
While at the 2025 World Orphan Drug Congress (WODC) in Boston, CTF CEO Annette Bakker,…
NF1Story of NF
Story of NF: Everly F.
At two months old, Everly did not hit her gross motor milestones, and I started…
NF2-SWNStory of NF
“It’s not a sprint, it’s a marathon” – Brittany’s NF2-SWN Journey
Meet Brittany Iskula: a wife, mom of three, school nurse, runner—and fierce advocate for NF…
Awards & GrantsFeaturedFeatured EUScience & Research
Attention NF Researchers: New Federal Funding Opportunities Available
NF (neurofibromatosis or schwannomatosis) is now eligible for two Department of Defense (DoD) research funding…
AwarenessFeaturedFeatured EUNF SummitSWN
A Rare Connection at the NF Summit
From left: Dave, Dale, Jason That’s how Dale described the moment he stood alongside David…
AwarenessPress Release
Children’s Tumor Foundation Leads Global Call to Action on World NF Awareness Day
Four million people around the world live with NF, a group of genetic conditions that…