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The latest news, stories, and updates from the Children's Tumor Foundation.
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NF2-SWNStory of NF
Story of NF: Anisha R.
I was diagnosed at the age of 26 in 2022. I experienced extraordinary NF2-SWN effects…
AdvocacyFeatured
Our Fight Continues
Update: March 19, 2025 Dear NF Families and Friends, Last night, we received devastating news:…
Awareness
2025 Shine a Light Locations
Shine a Light on NF brings NF awareness into the community by lighting up buildings,…
Collaborations & PartnershipsGlobalPress Release
Children’s Tumor Foundation’s Montse Montaner Joins CureAge Therapeutics
Seasoned international advisor will serve on the board of CureAge Therapeutics The Children's Tumor Foundation…
CTF in the NewsPharma
Children’s Tumor Foundation Featured in Two-Part Series in BioSpace on Reviving Abandoned Drugs for Rare Disease Treatments
The Children's Tumor Foundation (CTF) is spotlighted in two parts in the life science publication…
AdvocacyAwarenessFeaturedFeatured EUPharma
From NF to the World: Rare Disease Day and the Race for Faster Treatments
This has been a February to remember! In just a few weeks, a new drug…
NF1Story of NF
Story of NF: Jonah S.
I was diagnosed at birth. Unidentified Bright Spots were found during an MRI when I…
Collaborations & PartnershipsFeaturedFeatured EUNF1PharmaPress ReleaseScience & Research
Healx Announces First Patient Dosed in Phase 2 Trial Evaluating HLX-1502 for the Treatment of NF1
Healx has dosed the first patient in its Phase 2 trial for HLX-1502 - the…
Featured EU
CTF Europe Brochure in Multiple Languages
We are pleased to share our new trifold brochure about CTF Europe, now available in…
FeaturedNF Clinic Network (NFCN)NF1NF2-SWNPress ReleaseSWN
UF Health Jacksonville joins the NF Clinic Network
Enhancing Clinical Care for Neurofibromatosis and Schwannomatosis Patients UF Health Jacksonville joins the NF…
Collaborations & PartnershipsFeaturedFeatured EUNF1PharmaPress ReleaseScience & Research
CureAge Therapeutics Launches to Advance Genetic Therapies for Neurofibromatosis
Children’s Tumor Foundation and Deep Science Ventures Spearhead New Biotech to Develop Curative Treatments for…
Science & Research
NF Science Explained: Research Links Immune Cells to Tumor Growth in Vestibular Schwannomas
In this article, the Children’s Tumor Foundation offers a patient-friendly summary of a scientific publication…