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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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AdvocacyFeatured

Our Fight Continues

Update: March 19, 2025 Dear NF Families and Friends, Last night, we received devastating news:…
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Awareness

2025 Shine a Light Locations

Shine a Light on NF brings NF awareness into the community by lighting up buildings,…
A person stands with arms crossed next to text announcing their joining CureAge Therapeutics from the Children's Tumor Foundation. Logos of both organizations are displayed.
Collaborations & PartnershipsGlobalPress Release

Children’s Tumor Foundation’s Montse Montaner Joins CureAge Therapeutics

Seasoned international advisor will serve on the board of CureAge Therapeutics The Children's Tumor Foundation…
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CTF in the NewsPharma

Children’s Tumor Foundation Featured in Two-Part Series in BioSpace on Reviving Abandoned Drugs for Rare Disease Treatments

The Children's Tumor Foundation (CTF) is spotlighted in two parts in the life science publication…
Children's Tumor Foundation logo on the left and Rare Disease Day logo with February 28 date on the right.
AdvocacyAwarenessFeaturedFeatured EUPharma

From NF to the World: Rare Disease Day and the Race for Faster Treatments

This has been a February to remember! In just a few weeks, a new drug…
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NF1Story of NF

Story of NF: Jonah S.

I was diagnosed at birth. Unidentified Bright Spots were found during an MRI when I…
Collaborations & PartnershipsFeaturedFeatured EUNF1PharmaPress ReleaseScience & Research

Healx Announces First Patient Dosed in Phase 2 Trial Evaluating HLX-1502 for the Treatment of NF1

Healx has dosed the first patient in its Phase 2 trial for HLX-1502 - the…
Tri-fold brochure for Children's Tumor Foundation Europe, detailing NF information, mission, and contact details. Features images of smiling people and foundation's logo.
Featured EU

CTF Europe Brochure in Multiple Languages

We are pleased to share our new trifold brochure about CTF Europe, now available in…
Logos of Children's Tumor Foundation, NF Clinic Network, and UF Health Jacksonville.
FeaturedNF Clinic Network (NFCN)NF1NF2-SWNPress ReleaseSWN

UF Health Jacksonville joins the NF Clinic Network

Enhancing Clinical Care for Neurofibromatosis and Schwannomatosis Patients   UF Health Jacksonville joins the NF…
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Collaborations & PartnershipsFeaturedFeatured EUNF1PharmaPress ReleaseScience & Research

CureAge Therapeutics Launches to Advance Genetic Therapies for Neurofibromatosis

Children’s Tumor Foundation and Deep Science Ventures Spearhead New Biotech to Develop Curative Treatments for…
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Science & Research

NF Science Explained: Research Links Immune Cells to Tumor Growth in Vestibular Schwannomas

In this article, the Children’s Tumor Foundation offers a patient-friendly summary of a scientific publication…
Child cheering beside text: "IT'S A GO! FDA approves drug for children and adults with NF1." Website: ctf.org.
NF1PharmaScience & ResearchTop StoryTop Story EU

IT’S A GO! NF’s NEXT BIG WIN!

Today, we make history... again! The FDA has officially approved Gomekli (mirdametinib) - the second-ever…