Founded in 1978, the Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation and a leading force in the fight to end NF.
Our Mission: Drive research, expand knowledge, and advance care for the NF community
Our Vision: End NF
About NF
NF refers to a group of genetic conditions that collectively affect 1 in every 2,000 births. NF includes neurofibromatosis type 1 (NF1) and all forms of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2. These conditions cause tumors to grow on nerves throughout the body and can lead to deafness, blindness, disfigurement, bone abnormalities, learning disabilities, disabling pain, and cancer.
Ending NF through research
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Yesterday
Founded in 1978, CTF celebrates 45 years of funding research, investing nearly $200 million to advance the understanding of NF in the search for treatments and a cure.
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Today
CTF is the world’s leading nonprofit dedicated to funding and driving innovative research that will result in effective treatments for the millions of people worldwide who live with NF
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Tomorrow
Our innovation pillars are to develop more drugs, accelerate treatments, strengthen clinical trials, and empower all stakeholders.
Bringing the Best NF Care to Patients
NF Registry
Join the thousands of people who have enrolled in the NF Registry, a critical tool in matching NF patients to clinical trials.
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Resource Library
We connect patients with the education and information they need through patient brochures and educational webinars.
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NF Patient Symposia
Whether at our national NF Summit or a local NF clinic symposium, families hear the latest in NF research and connect with other families.
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Collaborating with NF Professionals Around the World on the Best NF Research
Connecting Communities and Raising Funds
for NF Research
Shine a Light NF Walk
Shine a Light NF Walks bring families and friends together in the community to raise funds and build community.
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NF Endurance
Professional and amateur athletes run, bike, and swim in endurance events to raise awareness and funds for NF research.
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Cupid's Undie Run
Cupid’s is a mile(ish) fun run in which brightly adorned, underwear-clad team members run outdoors for NF awareness.
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Every gift makes
a difference
Join the Children’s Tumor Foundation’s mission to end NF. Your generosity fuels critical research and makes life-saving progress possible.
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