The Children’s Tumor Foundation is the drug discovery engine for NF. By bringing together patients, doctors, scientists, and pharma, we drive treatments, advance care, and deliver faster results for millions affected by neurofibromatosis or schwannomatosis. Our patient-first collaborative approach accelerates drug development and brings life-changing therapies to patients faster – driven by our mission to end NF.
Our Mission: Drive research, expand knowledge, and advance care for the NF community
Our Vision: End NF
About NF
NF refers to a group of genetic conditions that collectively affect 1 in every 2,000 births. NF includes neurofibromatosis type 1 (NF1) and all forms of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2. These conditions cause tumors to grow on nerves throughout the body and can lead to deafness, blindness, disfigurement, bone abnormalities, learning disabilities, disabling pain, and cancer.
Ending NF through research
✓
Yesterday
Founded in 1978, CTF celebrates more than 45 years of funding research, investing nearly $200 million to advance the understanding of NF in the search for treatments and a cure.
✓
Today
CTF is the drug discovery engine for NF. By bringing together patients, doctors, scientists, and pharma, we drive treatments, advance care, and deliver faster results for millions affected by NF.
✓
Tomorrow
The innovation pillars of our Strategic Plan will develop more drugs for NF, accelerate treatments, strengthen clinical trials, and empower all stakeholders in the fight to end NF.
Bringing the Best NF Care to Patients
NF Clinic Network
More than 20,000 patients a year visit our NF Clinic Network, which includes more than 70 clinics across North America.
Learn More
NF Registry
Join the thousands who have enrolled in the NF Registry, a critical tool in matching NF patients to clinical trials.
Learn More
Resource Library
We connect patients with the education and information they need through patient brochures and educational webinars.
Learn More
NF Patient Symposia
Whether at our national NF Summit or a local NF clinic symposium, families hear the latest in NF research and connect with other families.
Learn More
Collaborating with NF Professionals Around the World on the Best NF Research
Raising Funds and
Connecting Communities
Shine a Light NF Walk
Shine a Light NF Walk program brings local families and friends together to raise funds, promote awareness, and build community.
Learn More
NF Endurance
Professional and amateur athletes run, bike, and swim in endurance events to raise awareness and funds for NF research.
Learn More
Cupid's Undie Run
Cupid’s is a mile(ish) fun run in which brightly adorned, underwear-clad team members run outdoors for NF awareness.
Learn More
Every gift makes
a difference
Join the Children’s Tumor Foundation’s mission to end NF. Your gifts fuel critical research and make life-saving progress possible.
Donate TodayStay Up-To-Date
Join our mailing list for news, exclusive resources, events and opportunities.
"*" indicates required fields
