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About the Children's Tumor Foundation

Founded in 1978, the Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation and a leading force in the fight to end NF.

Learn MoreMission & Impact

Our Mission: Drive research, expand knowledge, and advance care for the NF community

Our Vision: End NF

About NF

NF refers to a group of genetic conditions that collectively affect 1 in every 2,000 births. NF includes neurofibromatosis type 1 (NF1) and all forms of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly called neurofibromatosis type 2. These conditions cause tumors to grow on nerves throughout the body and can lead to deafness, blindness, disfigurement, bone abnormalities, learning disabilities, disabling pain, and cancer. 

Ending NF through research


Founded in 1978, CTF celebrates 45 years of funding research, investing nearly $200 million to advance the understanding of NF in the search for treatments and a cure.


CTF is the world’s leading nonprofit dedicated to funding and driving innovative research that will result in effective treatments for the millions of people worldwide who live with NF


Our innovation pillars are to develop more drugs, accelerate treatments, strengthen clinical trials, and empower all stakeholders.

Bringing the Best NF Care to Patients

NF Clinic Network

More than 15,000 patients a year visit our NF Clinic Network.

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NF Registry

Join the thousands of people who have enrolled in the NF Registry, a critical tool in matching NF patients to clinical trials.

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Resource Library

We connect patients with the education and information they need through patient brochures and educational webinars.

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NF Patient Symposia

Whether at our national NF Summit or a local NF clinic symposium, families hear the latest in NF research and connect with other families.

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Collaborating with NF Professionals Around the World on the Best NF Research

NF Conference

Our annual gathering of NF researchers, clinicians, and other experts advances collaboration, research, and NF clinical care.

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NF Research

CTF initiates and funds vital research, scientific collaborations, and partnerships that accelerate NF research and drug development.

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CTF Europe

Children’s Tumor Foundation Europe is a medical research NGO that serves as a partner to CTF in the United States.

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We actively seek partnerships with pharmaceutical and biotech companies to catalyze advancements.

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Connecting Communities and Raising Funds

for NF Research

Shine a Light NF Walk

Shine a Light NF Walks bring families and friends together in the community to raise funds and build community.

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NF Endurance

Professional and amateur athletes run, bike, and swim in endurance events to raise awareness and funds for NF research.

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Cupid's Undie Run

Cupid’s is a mile(ish) fun run in which brightly adorned, underwear-clad team members run outdoors for NF awareness.

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Every gift makes

a difference

Join the Children’s Tumor Foundation’s mission to end NF. Your generosity fuels critical research and makes life-saving progress possible.

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