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NF Clinic Network (NFCN)

About the NFCN

For more information or questions about the NFCN, contact:

HEATHER RADTKE, MS, CGC
Director, Clinical Programs
646-738-8574

Contact Us

The NF Clinic Network (NFCN) is the first nationwide network dedicated to improving clinical care and establishing best practices for treating those living with NF. The NFCN recognizes clinics that provide comprehensive medical care to individuals with NF, foster patient education, and encourage participation in clinical research trials and the NF registry.

Established by the Children’s Tumor Foundation in 2007 to standardize and raise the level of neurofibromatosis and schwannomatosis clinical care nationally and integrate research into clinical care practices, there are now approximately 70 NF Clinics across the country in the network that have demonstrated their ability to provide specialty care to NF patients and their families. Any NF clinic can apply to be a part of the clinic network. Applications are reviewed and accepted or declined by the CTF Clinical Care Advisory Board based on multiple factors, including NF expertise, patient volume, multidisciplinary approach, research support and connections with CTF.

How to Join the NFCN

All NF care providers are invited to submit an application for affiliate clinic status. Applications can be requested from Heather Radtke at hradtke@ctf.org. Applications are reviewed by the CTF Clinical Care Advisory Board and accepted or declined based on several factors, including NF expertise, patient volume, multidisciplinary approach, research support and connections with local CTF volunteers. ​Once a clinic is accepted as a recognized NFCN site, the clinic submits an annual report at the end of each calendar year. At that time, clinics may apply for annual NFCN clinic stipends from the Children’s Tumor Foundation.

A woman in a white lab coat is looking through a microscope.

NF Registry

The NF Registry is a secure website that allows people living with all forms of NF to actively search for better treatments. Participating is safe, easy, and secure. For those under age 18, a parent or legal guardian/caretaker must complete the survey.
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