Filter Your Search

Two Counties, One Cause: High School students raise $20,000 for NF research

Jan 15, 2019, Posted in Fundraiser, Awareness, Community

For the third year, Tappan Zee High School hosted the annual “Two Counties, One Cause” basketball tournament on Friday, Jan. 11 and Saturday, Jan.12, a fundraiser to support the Children’s Tumor Foundation. The tournament, which featured six teams in the inaugural event, has grown to a field of 10 this year, comprised of five teams from Westchester County and five from Rockland County. Also playing for the first time is the Tappan Zee girls varsity basketball team, taking on Sleepy Hollow on Friday night. This year, the students raised $20,000. 

Stories of NF: Hannah L.

Jan 14, 2019, Posted in NF1, NF Hero

I was diagnosed with NF1 at 9 months old. My parents truly had no idea what neurofibromatosis was at the time because it was fairly new. I had a bump on my forehead that was quite noticeable, and they were afraid that it was a brain tumor. Thankfully it wasn't, but it was one of the scariest times because they were afraid of losing me.

An NF Hero's Surgery Journal: Part III

Jan 11, 2019, Posted in Video, Awareness, Community, NF1, NF Hero

Aidan Fraser is 18 years old and lives with NF1. He has a large plexiform neurofibroma on his neck that extends into his brainstem, down his back to his lungs and down his left arm. He’s had nearly two dozen surgeries. His most recent surgery took place in November 2018. Before, during, and after his hospital stay, Aidan kept a journal and a video diary detailing what was supposed to happen, what really happened, and how he was feeling. We’re honored to share Aidan’s journal entries in three parts.

An NF Hero's Surgery Journal: Part II

Jan 10, 2019, Posted in Video, Awareness, Community, NF1, NF Hero

Aidan Fraser is 18 years old and lives with NF1. He has a large plexiform neurofibroma on his neck that extends into his brainstem, down his back to his lungs and down his left arm. He’s had nearly two dozen surgeries. His most recent surgery took place in November 2018. Before, during, and after his hospital stay, Aidan kept a journal and a video diary detailing what was supposed to happen, what really happened, and how he was feeling. We’re honored to share Aidan’s journal entries in three parts.

New York Stem Cell Foundation Early Career Investigator Award RFAs now open

Jan 9, 2019, Posted in Outside Opportunities, Science

The 2019 New York Stem Cell Foundation Early Career Investigator Award RFAs have been released, which are open to early career investigators around the world. These awards provide $1.5 million over 5 years.