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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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CTF in the NewsScience & Research

Repurposed Drugs Offer Hope and Momentum for Rare Disease Treatments

While at the 2025 World Orphan Drug Congress (WODC) in Boston, CTF CEO Annette Bakker,…
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NF1Story of NF

Story of NF: Everly F.

At two months old, Everly did not hit her gross motor milestones, and I started…
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NF2-SWNStory of NF

“It’s not a sprint, it’s a marathon” – Brittany’s NF2-SWN Journey

Meet Brittany Iskula: a wife, mom of three, school nurse, runner—and fierce advocate for NF…
Text "NF Research Funding Opportunity" overlaid on a background of scientific imagery including DNA strands, molecules, and laboratory glassware.
Awards & GrantsFeaturedFeatured EUScience & Research

Attention NF Researchers: New Federal Funding Opportunities Available

NF (neurofibromatosis or schwannomatosis) is now eligible for two Department of Defense (DoD) research funding…
Three men stand smiling in front of a blue Children's Tumor Foundation backdrop, wearing event badges and foundation-themed shirts and hats.
AwarenessFeaturedFeatured EUNF SummitSWN

A Rare Connection at the NF Summit

From left: Dave, Dale, Jason That’s how Dale described the moment he stood alongside David…
May is nf awareness month.
AwarenessPress Release

Children’s Tumor Foundation Leads Global Call to Action on World NF Awareness Day

Four million people around the world live with NF, a group of genetic conditions that…
Runner participates in a road race; the woman in front wears sunglasses, a blue and green shirt, and a race bib, while spectators watch behind metal barriers.
AwarenessFeaturedFeatured EUNF2-SWN

Running Toward Hope: Leanna’s Journey with NF2-SWN and the Road Ahead

Photo Credit: NYSENew York Stock Exchange 2024 Leanna was just 16 years old when her…
A webinar slide titled "Genetics & Reproductive Options in NF" features an illustrated woman with a DNA strand, event details, and a photo of speaker Amanda Bergner from Columbia University.
Video

NF Knowledge Series Recording: Genetics & Reproductive Options in NF

This webinar is part of the Children's Tumor Foundation NF Knowledge Series and was recorded…
A person holds a magazine titled "NF News," featuring a smiling young girl in a pink shirt seated in a wheelchair on the cover.
AwarenessFeaturedFeatured EU

NF News Spring 2025 is Available Now

The new issue of NF News, the official newsletter of the Children's Tumor Foundation, is…
A young girl with a flower in her hair sits smiling in a wheelchair on a sunny day, wearing a patterned cardigan and a denim skirt.
FeaturedFeatured EUNF1Story of NF

Kendall Reeve: A Story of Strength and Hope

When Stephanie and Matthew Reeve welcomed their daughter Kendall into the world, they sensed something…
Text "NF Research Funding Opportunity" overlaid on a background of scientific imagery including DNA strands, molecules, and laboratory glassware.
Outside Opportunities

2026 Vilcek Prizes for Creative Promise in Biomedical Science

The Vilcek Foundation will award three Vilcek Prizes for Creative Promise in Biomedical Science of $50,000…
A roadside billboard displays a young boy with the text, “Born a Fighter. He shouldn’t have to fight tumors alone.” and website endnf.org against a blue background.
AwarenessFeatured

NF Awareness Month National Billboard Campaign

We’re thrilled to announce that, for the fifth year in a row, Lamar Advertising is…