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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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May is nf awareness month.
AwarenessPress Release

Children’s Tumor Foundation Leads Global Call to Action on World NF Awareness Day

Four million people around the world live with NF, a group of genetic conditions that…
Runner participates in a road race; the woman in front wears sunglasses, a blue and green shirt, and a race bib, while spectators watch behind metal barriers.
AwarenessFeaturedFeatured EUNF2-SWN

Running Toward Hope: Leanna’s Journey with NF2-SWN and the Road Ahead

Photo Credit: NYSENew York Stock Exchange 2024 Leanna was just 16 years old when her…
A webinar slide titled "Genetics & Reproductive Options in NF" features an illustrated woman with a DNA strand, event details, and a photo of speaker Amanda Bergner from Columbia University.
Video

NF Knowledge Series Recording: Genetics & Reproductive Options in NF

This webinar is part of the Children's Tumor Foundation NF Knowledge Series and was recorded…
A person holds a magazine titled "NF News," featuring a smiling young girl in a pink shirt seated in a wheelchair on the cover.
AwarenessFeaturedFeatured EU

NF News Spring 2025 is Available Now

The new issue of NF News, the official newsletter of the Children's Tumor Foundation, is…
A young girl with a flower in her hair sits smiling in a wheelchair on a sunny day, wearing a patterned cardigan and a denim skirt.
FeaturedFeatured EUNF1Story of NF

Kendall Reeve: A Story of Strength and Hope

When Stephanie and Matthew Reeve welcomed their daughter Kendall into the world, they sensed something…
Text "NF Research Funding Opportunity" overlaid on a background of scientific imagery including DNA strands, molecules, and laboratory glassware.
Outside Opportunities

2026 Vilcek Prizes for Creative Promise in Biomedical Science

The Vilcek Foundation will award three Vilcek Prizes for Creative Promise in Biomedical Science of $50,000…
A roadside billboard displays a young boy with the text, “Born a Fighter. He shouldn’t have to fight tumors alone.” and website endnf.org against a blue background.
AwarenessFeatured

NF Awareness Month National Billboard Campaign

We’re thrilled to announce that, for the fifth year in a row, Lamar Advertising is…
The image displays the text "CLINICAL RESEARCH NEWS" in teal with four red dots between "CLINICAL" and "RESEARCH.
CTF in the NewsFeaturedFeatured EUScience & Research

CTF Featured in Clinical Research News for Rethinking the Role of Nonprofits in R&D

The Children’s Tumor Foundation (CTF) was recently featured in Clinical Research News in an article…
A young child with curly brown hair and a green and white shirt smiles outdoors with a blurred forest background.
NF1Story of NF

Story of NF: Michael M.

Michael was diagnosed with neurofibromatosis type 1 (NF1) at only two months old. NF has…
Cover of the 2024 Impact Report by Children's Tumor Foundation, featuring a blue molecular structure with the text "Accelerating Discovery, Transforming Lives.
AwarenessTop StoryTop Story EU

Children’s Tumor Foundation 2024 Impact Report

The Children’s Tumor Foundation (CTF) has released its latest impact report, detailing significant progress in…
A person with short hair, glasses, and a black jacket smiles against a dark background.
FeaturedFeatured EUScience & Research

CTF CEO Annette Bakker Moderates Panel at World Orphan Drug Congress 2025

Children’s Tumor Foundation CEO Annette Bakker to speak on unleashing the life-changing potential of shelved…
Several glass laboratory beakers, flasks, and test tubes filled with liquid are arranged against a blue-lit background.
CTF in the NewsFeaturedFeatured EUScience & Research

How a Once-Abandoned Drug Found New Life – and Changed the Future for NF Patients

The drug mirdametinib was once shelved by Pfizer. Today, it’s Gomekli - an FDA-approved treatment…