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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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Collage of diverse individuals wearing blue shirts with "fight nf" logos, promoting neurofibromatosis research awareness.
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Make NF Research Visible: Video

In 2024, the Children’s Tumor Foundation has expanded our NF Awareness Month campaign to Make…
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Real Clear Publishes Thought Piece from CTF CEO Annette Bakker about Using Federal Funding in Research

Real Clear published a thought piece from Children's Tumor Foundation CEO Annette Bakker, PhD, about…
A woman and a young child smiling on a beach with a sailboat in the distance. the child holds a teddy bear.
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A Conversation with Kim Snipes, CTF Board Member and NF Mom

Kim with Madi and CoCo, Madi's favorite stuffy, who has been by her side at…
Awareness

Make NF Research Visible: Diane Owens

The Children's Tumor Foundation unveiled its 2024 portrait collection, "Make NF Research Visible."  Through captivating…
Awareness

Make NF Research Visible: Jake Lipe

The Children's Tumor Foundation unveiled its 2024 portrait collection, "Make NF Research Visible."  Through captivating…
A man in a blue t-shirt smiles and makes a "rock on" gesture, standing on a bridge with a city skyline in the background during sunset.
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NFE Athlete Spotlight: Casey Perez

Casey Perez will tell you that running saved his life. Now, he’s part of the…
Awareness

Make NF Research Visible: Emily Little, RN, BSN

The Children's Tumor Foundation unveiled its 2024 portrait collection, "Make NF Research Visible."  Through captivating…
May is nf awareness month: highlighting neurofibromatosis with 31 facts, a genetic condition affecting 1 in 2,000 births. visit ctf.org for more information.
Awareness

31 Facts About NF in 6 Languages

Expand your knowledge and contribute to raising awareness throughout NF Awareness Month with 31 Facts…
Woman smiling and holding an award at the children's tumor foundation event, with a banner reading "ending nf through research" in the background.
Awareness

Volunteer of the Year: Gwen Coverdale

National Volunteer Appreciation Week (April 21-27, 2024) may only happen once a year, but all…
A teenage boy stands with arms outstretched in front of a colorful mural of wings and a sun, wearing a casual t-shirt and shorts.
NF1Story of NF

Stories of NF: Owen M

Owen was diagnosed with NF 1 before the age of one. Shortly after, Owen started…
Healx announces investment from children's tumor foundation to advance neurofibromatosis type 1 treatments.
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Healx to receive investment from Children’s Tumor Foundation to advance Neurofibromatosis Type 1 treatments

Milestone payments from CTF will support advance of Healx’s lead compound, HLX-1502, to clinical trials…
Woman smiling with her hand on her hip, standing in front of a digitally added autumnal forest backdrop.
NF1Story of NF

Stories of NF: Blanchesca G

My mom has told me how I got NF and it was when I was…