Privacy Policy

The Donor Privacy Policy is an official policy approved by the Children’s Tumor Foundation Board of Directors. The Children’s Tumor Foundation maintains the highest level of respect for the privacy of our donors. The Foundation does not sell, trade, or rent donor data. Further information on specific aspects of the Foundation’s commitment to protecting your information is provided below.



At the Children’s Tumor Foundation we value the support of our donors and take pride in our responsible stewardship of your support and information. The Foundation and our employees are committed to following the Association of Fundraising Professional’s Donor Bill of Rights to let you know that your commitment to us, in turn receives a commitment from us: 

“Philanthropy is based on voluntary action for the common good. It is a tradition of giving and sharing that is primary to the quality of life. To ensure that philanthropy merits the respect and trust of the general public, and that donors and prospective donors can have full confidence in the nonprofit organizations and causes they are asked to support, we declare that all donors have these rights: 

I. To be informed of the organization's mission, of the way the organization intends to use donated resources, and of its capacity to use donations effectively for their intended purposes.

II. To be informed of the identity of those serving on the organization's governing board, and to expect the board to exercise prudent judgment in its stewardship responsibilities. 

III. To have access to the organization's most recent financial statements.

IV. To be assured their gifts will be used for the purposes for which they were given.

V. To receive appropriate acknowledgement and recognition. 

VI. To be assured that information about their donation is handled with respect and with confidentiality to the extent provided by law.

VII. To expect that all relationships with individuals representing organizations of interest to the donor will be professional in nature.

VIII. To be informed whether those seeking donations are volunteers, employees of the organization or hired solicitors.

IX. To have the opportunity for their names to be deleted from mailing lists that an organization may intend to share. 

X. To feel free to ask questions when making a donation and to receive prompt, truthful and forthright answers.”



Information Collected

The Children’s Tumor Foundation collects personal information from donors for the purposes of processing payments, donations, and communicating with donors about the Foundation, as well as conducting the operations of the Foundation including fundraising and patient support. This information may include name, amount donated, address, telephone number, donor comments, e-mail address, and any other personal information provided (“Donor Data”). For donations by check, Donor Data also includes the data visible on the check.

As part of providing an online experience, the Children’s Tumor Foundation may store various data that are collected as part of standard web operations (including, but not limited to, IP addresses and cookies). The Foundation may use this data for purposes described in this policy, including analytical needs and improved functionality of our website. The Children’s Tumor Foundation makes limited use of cookies, including third party cookies (such as cookies from payment processors), to track sessions, help store data, and fulfill the purposes set out in this policy. You can prevent or delete our cookies by adapting your browser settings, although this will likely affect the functionality of the website.

The Children’s Tumor Foundation’s website contains links to other sites. Please be aware that the Foundation is not responsible for the privacy practices of such sites (nor does the appearance of external hyperlinks constitute endorsement of the linked sites, or the information, products or services contained therein). The Foundation encourages users to read the privacy statements of every website that collects personally identifiable information.

Donor Data

Donor Data may be used for these kinds of purposes:

  • Distributing receipts and acknowledging donations
  • Informing donors about upcoming fundraising and other activities of the Children’s Tumor Foundation
  • Internal analysis, such as research and analytics
  • Record keeping
  • Reporting to applicable government agencies as required by law
  • Surveys, metrics, and other analytical purposes
  • Other purposes related to the fundraising operations

Anonymous donor information may be used for promotional and fundraising activities. Comments that are provided by donors may be publicly published and may be used in promotional materials. The Foundation may use available information to supplement the Donor Data to improve fundraising efforts. The Foundation may allow donors the option to have their name publicly associated with their donation unless otherwise requested as part of the online donation process. The Children’s Tumor Foundation uses data gathered from payment processors and other service providers only for the purposes described in this policy.

The Children’s Tumor Foundation chapters have signed agreements with the Foundation. Unless you request otherwise, the Foundation may share information with the appropriate chapter. Chapters are bound by this privacy policy. Children’s Tumor Foundation chapters use this information for local newsletters and event announcements.

Financial Information

It is the Foundation’s internal policy to limit access to financial information to professional staff and volunteers who need to process that information for the purposes described above. Personal financial information is not sold to or traded with other parties.

The Children’s Tumor Foundation uses partners to provide online payment processing services. Usually, the privacy policies of these organizations will be presented to you on their respective websites and typically also as part of your donation process. If you pay by credit card, we do not store your credit card information, bank account numbers, or other financial account data sent directly to those processing services.


The Children’s Tumor Foundation is committed to protecting donor personal information from unauthorized access, alteration, disclosure, or destruction. The Foundation undertakes a range of technology and security practices, including data encryption, password protection, and other strict policy measures to protect sensitive data and safeguard the privacy of identifiable information from unauthorized access or improper use.  Furthermore, our organization values and policies are committed to the protection of user information, and as such we limit employee access only to authorized persons and processes.

Payment Processors and Other Service Providers

Payment processors allow donors to give electronically using a payment services account, a credit card, or other payment method. The Children’s Tumor Foundation works directly with these processors, and employs due diligence to ensure the integrity of these organizations. However, these processors do collect certain information from donors and purchasers. Please consult their respective privacy policies to determine their practices.


Maintenance contractors partnered with the Children’s Tumor Foundation may be granted access to your personal information in the course of maintenance or providing end users with products or services. Access to your personal information by these contractors is limited to the information reasonably necessary for the contracting company to perform its work. These contractors include the organizations that provide the Foundation with technology and with services and/or content related to better operation and maintenance of the website and donation pages. The Children’s Tumor Foundation requires that partnered maintenance contractors protect the privacy of your personal information consistent with this Privacy Policy to not use or disclose your personal information for any purpose other than providing us and/or our end users with products and services.

Other Disclosures

The Children’s Tumor Foundation may disclose information when required by law; when needed to protect our rights, privacy, safety, property, donors, or users; and when necessary to enforce the terms of service.

Data Retention

The Foundation seeks to retain donor-related information only as needed to fulfill the purposes described in this policy unless a longer retention period is required by law or regulations. For example, tax laws in the United States may require the Foundation to keep contact information and contribution level of donors on file.



Telephone Solicitation

The Children’s Tumor Foundation does not perform general phone solicitation of the public.

Email Policy

Email is an efficient means of communicating with our constituents. Foundation programs and chapters regularly communicate with their constituents by email. All mass emails include an unsubscribe button. The Children’s Tumor Foundation respects your desire to opt out of email distribution lists.

Direct Mail Policy

Mail solicitations are a key component of the Foundation’s fundraising portfolio. Direct mail campaigns occur up to several times per year. Foundation mailings include information on programs and accomplishments. If you wish to opt out of these solicitations, please contact the Children's Tumor Foundation at or 1-800-323-7938.

Third Parties

The Foundation does not engage third parties, i.e. professional fundraising groups, to solicit on our behalf. All of our fundraising is done through our paid staff or volunteers. Most states do not consider United Way (UW), Community Health Charities (CHC) or the Combined Federal Campaign (CFC) third party fundraisers. However, some states have taken this position that organizations like these that process contributions through payroll deduction constitute third parties. The Children’s Tumor Foundation is a member of UW, CHC and CFC and continues to work through them to offer donors convenient opportunities to continue their support.

If you have questions, or would like to remove your information from our records, please contact us at or call 1-800-323-7938.