The Children’s Tumor Foundation annual NF Conference is the most important yearly gathering of the NF research and clinical communities, all focused on improving outcomes for patients with neurofibromatosis type 1 (NF1), and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN) formerly referred to as neurofibromatosis type 2. The NF Conference is a global event, attracting participants worldwide across a wide range of scientific disciplines from research and clinical backgrounds. The event is a critical forum for consensus building and advancing basic, translational, and clinical research in NF and related fields, while fostering collaborations within and beyond the NF community.
Conferences & Education
The Children's Tumor Foundation is dedicated to continued discovery and education for NF healthcare professionals.
NF Conference2024 NF Clinicians Meeting
Friday, April 12, 7:00 pm – Saturday, April 13, 4:00 pm
Hyatt Regency San Antonio Riverwalk, in conjunction with the NF Summit.
The Children’s Tumor Foundation invites you to attend a day of education and networking with fellow NF clinicians to discuss relevant and practical information about neurofibromatosis and schwannomatosis. The meeting is open to all physicians, advanced practice providers, genetic counselors, and other healthcare providers.
There is no registration fee for this event. If participants are interested in joining the NF Summit prior to the Clinician’s Meeting, registration fees apply.
Please note that this medical education event is restricted to NF healthcare providers and their staff. There will be an in-person event with no live virtual offering. Registration is required by March 27, 2024.
For questions, please reach out to info@ctf.org
Friday Evening Reception
Friday, April 12, 7 pm – 9 pm
NF1 Throughout the Lifespan – Panel Presentation with Laura Klesse, MD, PhD and Kaleb Yohay, MD.
Reception with appetizers and drinks to follow.
Sponsored by
Saturday Education Day Agenda
7:30 am – 4:00 pm
| Diagnostic Evaluation of Pediatric Patients with Single Schwannoma | Kaleb Yohay, MD, NYU Langone Medical Center |
| Vestibular Dysfunction and Rehabilitation in NF2-related Schwannomatosis | Jennifer Millar, MS, PT, Johns Hopkins University |
| Cerebrovascular Manifestations in Neurofibromatosis and Schwannomatosis | Laura Lehman, MD, MPH, Boston Children’s Hospital |
| Interpretation of Genetic Testing and the Variant Curation Expert Panel (VCEP) | Alicia Gomes, MS, CGC, University of Alabama at Birmingham |
| Preimplantation Genetic Testing: Referral Considerations for the NF Provider |
Krista Schatz, MS, LCGC, Johns Hopkins University Christine Hertenstein, MGC, LCGC, Johns Hopkins University |
|
Evaluation of NF1 with Atypical Phenotype |
David Viskochil, MD, PhD, University of Utah |
| Components of an Effective Transition Program for Pediatric to Adult Care | Pamela Trapane, MD, MME, University of Florida, Jacksonville |
| Transitioning from Pediatric to Adult Care: Psychological and Psychosocial Considerations | Jennifer Rohan, PhD, LCP, Children’s Hospital of Richmond at VCU |
| Neurofibromatosis Type 1 and Bone Health | Laura Klesse, MD, PhD, UT Southwestern Medical Center |
|
Evaluation of Plexiform Neurofibromas, Atypical Neurofibromas, and Malignant Peripheral Nerve Sheath Tumors Using Imaging and Artificial Intelligence |
Kien-Ninh Ina Ly, MBBS, Massachusetts General Hospital |
|
Palliative Care in NF |
Lynne Taylor, MD University of Washington Medical Center |
Educational Objectives
After completing this activity, the participant should be better able to:
- Discuss genetic impact on diagnosis, disease progression, and family planning for patients with NF/SWN
- Compare management options for patients with NF/SWN
- Describe psychosocial implications for patients with NF/SWN
Accreditation, Support and Credit
In support of improving patient care, this activity has been planned and implemented by Medical Learning Institute, Inc., and Children’s Tumor Foundation. Medical Learning Institute, Inc. is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
Physician Continuing Medical Education
Medical Learning Institute, Inc. (MLI) designates this live activity for a maximum of 6.25 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Commercial Support Statement
There is no commercial support associated with this activity.
Meeting Co-Chairs
Ashley Taylor, PA-C, University of Oklahoma Health Sciences Center
Ledare Finley, MS, LCGC, Children’s Tumor Foundation
Heather Radtke, MS, CGC, Children’s Tumor Foundation
Hotel Accommodations
The Hyatt Regency San Antonio Riverwalk. The hotel conference rate of $209 will be available to all attendees after registration confirmation.
If participants are interested in joining the NF Patient and Family Summit prior to the Clinician’s Meeting, registration fees apply.
Professional Education Series
INFER: Masterclasses in NF
INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis and schwannomatosis experts.
Learn More
Virtual Case Conferences
CTF’s Virtual Case Conferences are a monthly series organized by the Clinical Care Advisory Board on challenging issues in the management and treatment of NF1 and SWN, including NF2-SWN. Members of the NF Clinic Network are invited to attend the Virtual Case Conferences. For more information, please contact info@ctf.org.
Past Events & Workshops
- NF2 and Schwannomatosis Workshop 2022
- Diagnostic Criteria Revisions 2018
- Animal Model Workshop 2018
- Synodos Network Meeting 2017
NF2 and Schwannomatosis Workshop 2022
From Target to Drug to Clinic: On April 14, 2022, the Children’s Tumor Foundation hosted a full-day virtual workshop with expert clinicians, surgeons, researchers, and pharma representatives as we assess the current landscape of care, biology, and drug discovery for these rare disorders.
Diagnostic Criteria Revisions 2018
In June of 2018, The Children’s Tumor Foundation convened a group of 32 international experts in NYC at the Memorial Sloan Kettering Cancer Center to review and propose revisions to the diagnostic criteria of the neurofibromatoses, which had not been updated since NIH Consensus Conference in 1987. The goal of this workshop was to accurately and clearly delineate the conditions known at that time as NF1, NF2 and schwannomatosis, representing the best consensus among NF experts, to improve diagnostic accuracy. The final revisions were included by an expanded group of stakeholders, and incorporated input from patients, families and foundations, and other medical specialists, in addition to the original working group. The intent is for the new criteria to be usable, not just for NF specialists, but for all general practitioners.
To view the revised diagnostic criteria, Click Here
Animal Model Workshop 2018
In 2018, CTF hosted the second Neurofibromatosis Animal Model Workshop in Palm Springs, California. More than 20 animal models were presented at the United States and Canadian Academy of Pathology (USCAP) learning center and classified based on their histopathological features by expert pathologists. This was important for the validation of the models, for their analysis and comparison with other models, and for their future effective use in preclinical treatment trials.
Synodos Network Meeting 2017
In 2017, CTF organized a Synodos Network Meeting with all of the key leaders from all of the Synodos initiatives. The meeting provided a unique opportunity to share research updates and exchange views on specific Synodos-related matters and allowed essential input from CTF stakeholders, including patient representatives, donors, and board members.
Partner Meetings
Germany: Meeting of the Working Group of Neurofibromatoses | Nov. 17-18, 2023
Arbeitsgemeinschaft Neurofibromatosen
November 17-18, 2023
Hamburg, Germany
This event is directed for medical professionals with a good working knowledge of the German language. Lectures with a German title will be held in German and that lectures with an English title will be held in English.
For questions contact Said Farschtschi at nfambulanz@uke.de
Austria: Austrian Neurofibromatosis Symposium | Nov. 24, 2023
INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis and schwannomatosis experts.
INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis and schwannomatosis experts.
Österreichisches Neurofibromatose Symposium
November 24, 2023
Linz, Austria
This event is directed for medical professionals with a good working knowledge of the German language. Lectures with a German title will be held in German and that lectures with an English title will be held in English.
For questions contact Amedeo Azizi at kontakt@nfkinder.at
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