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Conferences & Education

The Children's Tumor Foundation is dedicated to continued discovery and education for NF healthcare professionals.

NF Conference

NF Conference

The Children’s Tumor Foundation annual NF Conference is the most important yearly gathering of the NF research and clinical communities, all focused on improving outcomes for patients with neurofibromatosis type 1 (NF1), and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN) formerly referred to as neurofibromatosis type 2. The NF Conference is a global event, attracting participants worldwide across a wide range of scientific disciplines from research and clinical backgrounds. The event is a critical forum for consensus building and advancing basic, translational, and clinical research in NF and related fields, while fostering collaborations within and beyond the NF community.

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2025 NF Clinicians Meeting

June 2025

Omni Shoreham Hotel, Washington, DC, in conjunction with the NF Summit.

Each year, the Children’s Tumor Foundation invites you to attend a day of education and networking with fellow NF clinicians to discuss relevant and practical information about neurofibromatosis and schwannomatosis. The meeting is open to all physicians, advanced practice providers, genetic counselors, and other healthcare providers.

There is no registration fee for this event. If participants are interested in joining the NF Summit prior to the Clinician’s Meeting, registration fees apply.

Please note that this medical education event is restricted to NF healthcare providers and their staff.  There will be an in-person event with no live virtual offering. 

For questions, please reach out to

Professional Education Series

INFER: Masterclasses in NF

INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis and schwannomatosis experts.

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Virtual Case Conferences

CTF’s Virtual Case Conferences are a monthly series organized by the Clinical Care Advisory Board on challenging issues in the management and treatment of NF1 and SWN, including NF2-SWN. Members of the NF Clinic Network are invited to attend the Virtual Case Conferences. For more information, please contact

Partner Meetings

Germany: Meeting of the Working Group of Neurofibromatoses | September 28, 2024

Workshop der AG Neurofibromatosen
September 28, 2024
Johannes Gutenberg University Mainz
Biozentrum 1, Hanns-Dieter-Hüsch-Weg 15 (Gebäude 1578)
55128 Mainz, Deutschland

This event is directed for medical professionals with a good working knowledge of the German language. Lectures with a German title will be in German and lectures with an English title will be in English.

EVENT BROCHURE coming soon!

Please contact for questions and registration:

Past Events & Workshops

NF2 and Schwannomatosis Workshop 2022

From Target to Drug to Clinic: On April 14, 2022, the Children’s Tumor Foundation hosted a full-day virtual workshop with expert clinicians, surgeons, researchers, and pharma representatives as we assess the current landscape of care, biology, and drug discovery for these rare disorders.

Diagnostic Criteria Revisions 2018

In June of 2018, The Children’s Tumor Foundation convened a group of 32 international experts in NYC at the Memorial Sloan Kettering Cancer Center to review and propose revisions to the diagnostic criteria of the neurofibromatoses, which had not been updated since NIH Consensus Conference in 1987. The goal of this workshop was to accurately and clearly delineate the conditions known at that time as NF1, NF2 and schwannomatosis, representing the best consensus among NF experts, to improve diagnostic accuracy. The final revisions were included by an expanded group of stakeholders, and incorporated input from patients, families and foundations, and other medical specialists, in addition to the original working group. The intent is for the new criteria to be usable, not just for NF specialists, but for all general practitioners.

To view the revised diagnostic criteria, Click Here

Animal Model Workshop 2018

In 2018, CTF hosted the second Neurofibromatosis Animal Model Workshop in Palm Springs, California. More than 20 animal models were presented at the United States and Canadian Academy of Pathology (USCAP) learning center and classified based on their histopathological features by expert pathologists. This was important for the validation of the models, for their analysis and comparison with other models, and for their future effective use in preclinical treatment trials.

Synodos Network Meeting 2017

In 2017, CTF organized a Synodos Network Meeting with all of the key leaders from all of the Synodos initiatives. The meeting provided a unique opportunity to share research updates and exchange views on specific Synodos-related matters and allowed essential input from CTF stakeholders, including patient representatives, donors, and board members.

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