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The latest news, stories, and updates from the Children's Tumor Foundation.

 

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Runner participates in a road race; the woman in front wears sunglasses, a blue and green shirt, and a race bib, while spectators watch behind metal barriers.
AwarenessFeaturedFeatured EUNF2-SWN

Running Toward Hope: Leanna’s Journey with NF2-SWN and the Road Ahead

Photo Credit: NYSENew York Stock Exchange 2024 Leanna was just 16 years old when her…
A person holds a magazine titled "NF News," featuring a smiling young girl in a pink shirt seated in a wheelchair on the cover.
AwarenessFeaturedFeatured EU

NF News Spring 2025 is Available Now

The new issue of NF News, the official newsletter of the Children's Tumor Foundation, is…
A young girl with a flower in her hair sits smiling in a wheelchair on a sunny day, wearing a patterned cardigan and a denim skirt.
FeaturedFeatured EUNF1Story of NF

Kendall Reeve: A Story of Strength and Hope

When Stephanie and Matthew Reeve welcomed their daughter Kendall into the world, they sensed something…
The image displays the text "CLINICAL RESEARCH NEWS" in teal with four red dots between "CLINICAL" and "RESEARCH.
CTF in the NewsFeaturedFeatured EUScience & Research

CTF Featured in Clinical Research News for Rethinking the Role of Nonprofits in R&D

The Children’s Tumor Foundation (CTF) was recently featured in Clinical Research News in an article…
Cover of the 2024 Impact Report by Children's Tumor Foundation, featuring a blue molecular structure with the text "Accelerating Discovery, Transforming Lives.
AwarenessTop StoryTop Story EU

Children’s Tumor Foundation 2024 Impact Report

The Children’s Tumor Foundation (CTF) has released its latest impact report, detailing significant progress in…
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FeaturedFeatured EUScience & Research

CTF CEO Annette Bakker Moderates Panel at World Orphan Drug Congress 2025

Children’s Tumor Foundation CEO Annette Bakker to speak on unleashing the life-changing potential of shelved…
Several glass laboratory beakers, flasks, and test tubes filled with liquid are arranged against a blue-lit background.
CTF in the NewsFeaturedFeatured EUScience & Research

How a Once-Abandoned Drug Found New Life – and Changed the Future for NF Patients

The drug mirdametinib was once shelved by Pfizer. Today, it’s Gomekli - an FDA-approved treatment…
A woman speaks at a podium during the Global NF Conference, with text highlighting "Patient Day at the Global NF Conference" on a blue background.
GlobalNF Conference

Patient Day at the Global NF Conference

As part of the 2024 Global NF Conference, the Children’s Tumor Foundation hosted its second…
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Awards & GrantsFeaturedFeatured EUNF1Science & Research

Young Investigator: Q&A with Sarah Morrow about NF1 and MPNST

The Young Investigator Award (YIA) provides two-year salary support to early-career NF researchers to help…
The United States Capitol building with its large dome and columns is shown from the front. An American flag waves on top, under a clear blue sky.
AdvocacyFeaturedFeatured EU

Children’s Tumor Foundation Chair Pens Message Urging Restoration of NF Research Funding

In an op-ed published in RealClearHealth, Gabriel Groisman, Chair of the Children's Tumor Foundation, calls…
A person stands with arms crossed next to text announcing their joining CureAge Therapeutics from the Children's Tumor Foundation. Logos of both organizations are displayed.
Collaborations & PartnershipsGlobalPress Release

Children’s Tumor Foundation’s Montse Montaner Joins CureAge Therapeutics

Seasoned international advisor will serve on the board of CureAge Therapeutics The Children's Tumor Foundation…
Children's Tumor Foundation logo on the left and Rare Disease Day logo with February 28 date on the right.
AdvocacyAwarenessFeaturedFeatured EUPharma

From NF to the World: Rare Disease Day and the Race for Faster Treatments

This has been a February to remember! In just a few weeks, a new drug…