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News
The latest news, stories, and updates from the Children's Tumor Foundation.
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Featured EU
Science & Research
Attention NF Researchers: New Federal Funding Opportunities Available
NF (neurofibromatosis or schwannomatosis) is now eligible for two Department of Defense (DoD) research funding…
Awareness
Featured
Featured EU
NF Summit
SWN
A Rare Connection at the NF Summit
From left: Dave, Dale, Jason That’s how Dale described the moment he stood alongside David…
Awareness
Featured
Featured EU
NF2-SWN
Running Toward Hope: Leanna’s Journey with NF2-SWN and the Road Ahead
Photo Credit: NYSENew York Stock Exchange 2024 Leanna was just 16 years old when her…
Awareness
Featured
Featured EU
Newsletter
NF News Spring 2025 is Available Now
The new issue of NF News, the official newsletter of the Children's Tumor Foundation, is…
Featured
Featured EU
NF1
Story of NF
Kendall Reeve: A Story of Strength and Hope
When Stephanie and Matthew Reeve welcomed their daughter Kendall into the world, they sensed something…
CTF in the News
Featured
Featured EU
Science & Research
CTF Featured in Clinical Research News for Rethinking the Role of Nonprofits in R&D
The Children’s Tumor Foundation (CTF) was recently featured in Clinical Research News in an article…
Awareness
Top Story
Top Story EU
Children’s Tumor Foundation 2024 Impact Report
The Children’s Tumor Foundation (CTF) has released its latest impact report, detailing significant progress in…
Featured
Featured EU
Science & Research
CTF CEO Annette Bakker Moderates Panel at World Orphan Drug Congress 2025
Children’s Tumor Foundation CEO Annette Bakker to speak on unleashing the life-changing potential of shelved…
CTF in the News
Featured
Featured EU
Science & Research
How a Once-Abandoned Drug Found New Life – and Changed the Future for NF Patients
The drug mirdametinib was once shelved by Pfizer. Today, it’s Gomekli - an FDA-approved treatment…
Global
NF Conference
Patient Day at the Global NF Conference
As part of the 2024 Global NF Conference, the Children’s Tumor Foundation hosted its second…
Awards & Grants
Featured
Featured EU
NF1
Science & Research
Young Investigator: Q&A with Sarah Morrow about NF1 and MPNST
The Young Investigator Award (YIA) provides two-year salary support to early-career NF researchers to help…
Advocacy
Featured
Featured EU
Children’s Tumor Foundation Chair Pens Message Urging Restoration of NF Research Funding
In an op-ed published in RealClearHealth, Gabriel Groisman, Chair of the Children's Tumor Foundation, calls…
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Patients
Understanding NF
Neurofibromatosis Type 1
NF2
-Related Schwannomatosis
Schwannomatosis
Find a Doctor
NF Treatments
NF Registry
Resources
Patient Engagement
Clinical Trials
Healthcare Professionals
Diagnostic Criteria
Conferences & Education
Training Grants
Clinical Trials Pipeline
Researchers
Funding Opportunities
Conferences & Education
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Pharma
For Pharma & Biotech
Industry Partnerships
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