News
The latest news, stories, and updates from the Children's Tumor Foundation.
Filter
AllAdvocacyAwards & GrantsAwarenessCollaborations & PartnershipsCovid-19CTF in the NewsCupid's Undie Run (CUR)FeaturedFeatured EUFundraiserGlobalNewsletterNF Clinic Network (NFCN)NF ConferenceNF EnduranceNF RegistryNF SummitNF1NF2-SWNOutside OpportunitiesPatient EngagementPharmaPress ReleasePublicationsScience & ResearchShine A Light Walk (SALW)Special EventsStory of NFSWNThis Is NFTools for KidsTop StoryTop Story EUUncategorizedVideoWays to Give
Awareness
Make NF Research Visible: Diane Owens
The Children's Tumor Foundation unveiled its 2024 portrait collection, "Make NF Research Visible." Through captivating…
Awareness
Make NF Research Visible: Jake Lipe
The Children's Tumor Foundation unveiled its 2024 portrait collection, "Make NF Research Visible." Through captivating…
AwarenessFundraiserNF Endurance
NFE Athlete Spotlight: Casey Perez
Casey Perez will tell you that running saved his life. Now, he’s part of the…
Awareness
Make NF Research Visible: Emily Little, RN, BSN
The Children's Tumor Foundation unveiled its 2024 portrait collection, "Make NF Research Visible." Through captivating…
Awareness
31 Facts About NF in 6 Languages
Expand your knowledge and contribute to raising awareness throughout NF Awareness Month with 31 Facts…
Awareness
Volunteer of the Year: Gwen Coverdale
National Volunteer Appreciation Week (April 21-27, 2024) may only happen once a year, but all…
NF1Story of NF
Stories of NF: Owen M
Owen was diagnosed with NF 1 before the age of one. Shortly after, Owen started…
Collaborations & PartnershipsFeaturedFeatured EUGlobalNF1Press Release
Healx to receive investment from Children’s Tumor Foundation to advance Neurofibromatosis Type 1 treatments
Milestone payments from CTF will support advance of Healx’s lead compound, HLX-1502, to clinical trials…
Collaborations & PartnershipsScience & Research
Schwannomatosis Open Research Collaborative Computational Partnership Initiative
Need help analyzing schwannomatosis omics or other big data? Apply for the Schwannomatosis Open Research…
AwarenessNF1Story of NF
Chiasm: A Published Essay by Heather Osterman-Davis
Heather Osterman-Davis is a published writer and an NF Mom. Her work has appeared in…
NF1PharmaScience & ResearchUncategorized
Important News Regarding Koselugo and Fasting Requirements
We're pleased to share a significant update regarding Koselugo (selumetinib), a drug used to manage…